Faye's problems started in June 2001 with horrendous dysfunctional uterine, bleeding and chronic pelvic pain. In November 2003 after a continuous battle with the medical profession, she was eventually diagnosed with having Endometriosis, which meant further surgery and drug therapy to try and control this disease. During this time she also suffered with arthritis and continual knee dislocations caused by the drugs she was being prescribed.
In February 2004 she began continuously vomiting after eating solid food. she was treated for a Duodenal Ulcer, Gastritis, Oesophagitis, Duodentis and was also diagnosed as having a Gross Oesophegeal Reflux, but the problems did not go away. She lost 24kg in weight and finally in October 2004, a specialist in LOndone diagnosed her as having Gastroparesis, which means paralysis of the stomach. In January 2005 she had a Jejunostomy operation and is now fed liquid food through this directly into her small intestine. At this present time she is unable to digest solid food properly and will in the near future be having an operation to insert an Enterra device, which is a Gastric Pacemaker, to try and alleviate the debilitating symptoms of this disease.
In November 2004 during an operation to stabilize her right kneecap she suffered an anphylactic reaction to the anaesetic, she had a cardiac arrest and had to be rescusitated. The knee operation was cancelled. She now has her leg in a splint and walks with crutches but is hopefully due to have an operation to stabilize her kneecap in the future.
It has been a difficult four year battle for Faye to get her medical problems correctly diagnosed. She has been to theatre 15 times for various procedures and has been in hospital over 30 times in East Sussex and London. As she has missed so much schooling her GCSE's have now been deferred. Despite all this she has reatained her sense of humour and is a thoughtful, caring and loving daughter and sister.
update written on March 24 2008
Right now I am currently on long term antibiotics as I have had MRSA since November, it went away but came back in January and still have it now. I'm still fed by the feeding tube in my bowel but it is at a slower rate because the MRSA has made my tummy round the tube really painful. Because of the lack of feed I am dizzy all the time and black out when I get up. I also have low blood pressure and bad migraines because of it. I'm also still bedridden and in a wheelchair. I don't really know about the future, there's not anything the doctors can do for me at the moment but you never know what might come up in the future you know there's scientific breakthroughs all the time so I just gotta keep fighting



Born ~ July 30th 1989
Illness ~ Gastroparesis
Stitchers
Karen ~ Scotland
Katherine ~ Uk
Victoria ~ UK
Helen ~ Uk
Sandra ~ Uk
Charlotte ~ Ireland
Magda ~ Scotland
International Stitchers
Angelika ~ Germany
Daniela ~ Italy
Amanda ~ Canada
Gloria ~ USA
Shelli ~ USA
Tina ~ USA
Jillian ~ USA
Barb ~ USA
Deb ~ USA
Debi ~ USA
Debbie ~ USA
MaryAnn ~ USA
Vicki ~ USA
N.J ~ USA
Cindy ~ USA
Nancy ~ USA
Barbara ~ USA
Mariann ~ USA
Sandy ~ USA
Jennifer ~ USA
Thought I would let you know that the Quilt for Faye arrived yesterday (July 31st 2008)
It is really beautiful and she is overwhelmed by the work and love that has gone into making it. She had to go into hospital this afternoon and is not at all well. I promised her I would email you. Thank you so much for making this quilt and Faye will be in touch as soon as she is able.
With best wishes
Liz (faye's mum) xx
Thank you so much for the Quilt. It is truely amazing and I will treasure it forever
All the stitchers are very talented and must have worked really hard. I have enclosed a picture of me and my Quilt. Faye