Alliza-Lily would like to say a big Thank You to all the stitchers, Leanda for quilting and to Love Quilts for all the hard work and love put into her beautiful butterfly quilt. She squealed in delight and I was moved to tears. From the bottom of my heart, thank you!! This quilt will follow her everywhere. xxxx
Alliza-Lily was rushed to hospital at 6 days old after turning blue and lifeless at home. She was diagnosed with Congenital Hyperinsulinism, a rare condition causing hypoglycaemia in infancy. Alliza-Lily is under the care of our local hospital and Great Ormond Street for her condition and underlying problems.
Her development delays are currently under investigation and we are awaiting to see a geneticist. She's had many tests including 3 EEGs, an MRI, 3 sweat tests, attempted lumbar puncture, an EMG, echogram and countless blood tests. After all that she goes through, she remains a happy little girl.