When Finley was born, we knew something wasn't right straight away, he was taken to special care, where he underwent treatment for bowel problems. We were sent home a week later. But this was just the start of our journey. Finley failed to gain weight and we ended up going back and forth to the hospital, spending days and weeks in our local hospital, with no answers. At 3 months old he was rushed into hospital for surgery to help him breathe, he had to have a procedure to strengthen his windpipe. Months went past and Finley didn't get stronger, he wasn't hitting the milestones. After a lot of fighting I managed to get genetic testing, which is when we were given the devastating news that Finley had SMS (smith Magenis syndrome) it felt like our whole world had come crashing down around us. But slowly we came to terms with the diagnosis and with help from professionals Finley started showing signs of improvement. Now aged 5 he can walk although does get very tired due to low tone, he can talk and is a very happy boy, who makes us smile everyday. Finley goes to a special school and is progressing well, although he's working around 18 months behind other children his age. He has autism too which brings its own problems, but compared to where we were, Finley is doing great.