Louie D's quilt   (Quilt Completed)
Louies quilt arrived today the work that goes into them is amazing. They truly are stunning. Louie adores his quilt he loves every square. All the detail, the fabric like a little maze, he is following every square picking out different things, he is mesmerized by it. It brought a huge calming effect on him, a rarity for him also will be perfect for hospital stay in January and future ones thank you so much to everyone who stitched and Sandra the speedy for her sewing and Gaynor and Kat.
Quilted by: Sandra (Beds)
Louie was born on the 19th of October he was born at 29 week by emergency c section due to me having severe pre eclampsia from 26 weeks pregnant he was transferred to Nottingham City neo natal unit he spent 2 and a half months on the unit as he developed septicaemia a month into his stay and stopped breathing eventually we was discharged home and for a short while it seemed the worst was over but as louie started to grow I noticed he wasn't like other baby's he was my first and doctors health vistors put my concerns down to being a first time mum but he was unusually quite he never looked directly at me he didn't meet any of his milestones so when he was a toddler I still had huge concerns he didn't talk at all not even the word mummy it was heart breaking and so after much pushing he was referred to speech and language therapy and there was the miracle id been waiting for the therapist picked up on several big markers for autism especially the walking on his tip toes so she referred him to a paediatric specialist and so the process began and in Dec he was first diagnosed with autism since then he has been through a lot he continued to have speech problems and didn't talk till he was 4 he has massive dietary requirements and problems gaining weight or growing in height and is under a dietitian and has fortini shakes to supplement his eating he has global development delays was diagnosed with hypermobility syndrome two years ago which the hospital are now further investigating as they suspect he has arthritis he is like a little old man some days and it's so sad to see him in such pain when all he ever loved was to be active he goes to a main stream school for the moment but is taught mostly 1to1 but he can't remain like this due to severity of his learning difficulties he is mentally 3 in his head but in a nearly 8 year old body so struggles to academicaly keep up with his year group on a home life front dealing with Louie's autism has got harder as he's got older he has meltdowns most days it upsetting as anything can spark it of and tends to hurt himself when throwing himself around he has no sense of danger in life Ether it's crossing the road to going up to strangers it hard to get him to understand it's hard to face people comments and complaints when he does something deemed not " normal " but he is the light of my life every battle we faced and continue to do I do for him he such a loving boy. I don't know how independent in the future Louie will be but we take it as it comes he smiles everyday and even if he doesn't like me smiling back as he has a thing of not liking other people smiling at him you know he's happy and is my lovely boy and has come so far