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LoveQuiltsUK - Euan M's quilt

Euan M's quilt    (Quilt Completed)

Born:June 2010
Illness: Metachromatic Leukodystrophy

Theme: Star Wars and Space

Quilt delivered: 27th Apr 2017
Photo of Euan M

Thank you

Thank you so much for Euan's quilt which arrived yesterday - it's amazing! this is him enjoying some chillout time today looking at all the wonderful designs.



Finished photos


Photo of Euan Ms quilt

Photo of Euan Ms quilt

Photo of Euan Ms quilt

Photo of Euan Ms quilt

Photo of Euan Ms quilt


Quilted by: Sandra (Beds)

Individual squares

Cross stitch square for Euan M's quilt
Stitched by: Alison (+)
Submitted: Jan 2017

Cross stitch square for Euan M's quilt
Stitched by: Anne (+)
Submitted: Jun 2016

Cross stitch square for Euan M's quilt
Stitched by: Bekki Young (+)
Submitted: Jan 2017

Cross stitch square for Euan M's quilt
Stitched by: EE(Beth)Filmer (+)
Submitted: Jan 2017

Cross stitch square for Euan M's quilt
Stitched by: Jeanne (+)
Submitted: Jan 2017

Cross stitch square for Euan M's quilt
Stitched by: Jenny (+)
Submitted: Jan 2017

Cross stitch square for Euan M's quilt
Stitched by: Joanne (+)
Submitted: Feb 2017

Cross stitch square for Euan M's quilt
Stitched by: Karen Davis (+)
Submitted: Mar 2017

Cross stitch square for Euan M's quilt
Stitched by: Leanne Malcolmson (+)
Submitted: Feb 2017

Cross stitch square for Euan M's quilt
Stitched by: Lou Lou (+)
Submitted: Aug 2016

Cross stitch square for Euan M's quilt
Stitched by: Monika (+)
Submitted: Apr 2017

Cross stitch square for Euan M's quilt
Stitched by: Victoria (+)
Submitted: Dec 2013


Fabric

Fabric for Euan M
Fabric for Euan M

Card

Card for Euan M
Stitched by: Becky Keith

Biography

Euan had no developmental problems until he was about 5 and a half years old when we started to have concerns about lack of weight gain, followed by issues with co-ordination and balance (although he had previously learnt to ride a bike) and then lots of incontinence issues. We thought that he had dyspraxia and he was referred to the community OT team. While we were still waiting to be seen, things deteriorated further and he suddenly started struggling to walk. Following blood tests and an MRI scan, he was diagnosed a few months later at 6 and a half, with Metachromatic Leukodystrophy, a genetic neurological condition which is degenerative and life-limiting. It affects the protective myelin sheath around the nerves which is gradually wasting away. All areas of the brain are affected leading to profound physical and cognitive disabilities.

A year after diagnosis, Euan was completely unable to walk and required hoist transfers, his speech had virtually gone and he had a gastrostomy. At 9 years old, he now has very limited motor function and poor head control, some visual problems and difficulty swallowing. It’s unclear how much he understands as his communication is so limited, but he probably understands more than we think he does! Fortunately he has not yet had any seizures and he is otherwise very healthy.

Euan is a very happy and sociable boy – he can still smile and laugh out loud which are moments we treasure.


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