It all began with a growth inside of a gland in his face. After investigations, it was found that he had a severe heart defect which was operated on at 10 weeks old.
Other issues suggested he may have Noonan syndrome and this was confirmed 6 months later. This has caused very low muscle tone, hearing loss, chest deformity, weight and growth issues among other things.
He has had to go though a lot of physio, many hospital appointments, 3 lots of surgeries and wears a hearing aid. He gets tired very easily and needs to sleep a lot so a love quilt would be perfect.