Riley was born at just 25 weeks. When he was born it took 11 minutes to get him breathing. We were told to expect the worse. With in an hour Riley was transferred to a hospital an hour away as the hospital he was born in couldn't cope with his needs.
Riley did amazingly the first couple of weeks then on Christmas eve at just 3 weeks old we had a phone call to tell us he had stopped breathing and we needed to get to hospital immediately as he wouldn't make it through the night.
Riley had caught GBS and it had given him sepsis, pneumonia and meningitis. Our little miracle was critically ill and incubated. He was on morphine to lower his heart rate to stop him having a heart attack, machines were breathing for him and he couldn't even tolerate feeds being put into his stomach. It was an awful time.
Fast forward a few months and we got to take our boy home. He came home on oxygen and with a feeding tube. Over the past few years he's gone from strength to strength he does still need oxygen treatment and help with a wheelchair and a one to one in school but he's exceeded everything the doctors said he would do.
He still has physio, dietician, consultants, OT, chest specialist, regular scans and eegs, daily meds, pumps and pain but he takes it all in his stride he's an amazing funny little boy and we couldn't be more proud of him.