Arlo was born normally but at just 10 weeks he had his first seizure, which lasted 25 minutes. He then went on to have many very prolonged seizures, some lasting for over 2 hours, and spent a lot of time in hospital. He has difficulty eating, and once stopped for two years. He now has a PEG (tube directly into his stomach) for medication and to top up his feeding.
He is now nearly 10, but suffers from seizures and chronic insomnia every night. Thankfully these seizures are shorter than when he was younger. Arlo is one of the happiest people I know and gets enormous pleasure from children's characters.
His development stopped at 18 months and hasn't progressed since. He has very few words but one word he does use is 'blanket'! I know he would love a quilt.