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LoveQuiltsUK - Robyn L's quilt

Robyn L's quilt    (Quilt Open)

Born:July 2014
Illness: Dystonic Quadraphonic Cerebral Palsy

Theme: Rainbows and butterflies

Date opened: 17th Jan 2018
Deadline: 31st May 2018

Photo of Robyn L

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for Robyn L

Child Interests

Robyn’s favourite colour is bright pink and red! But she loves all colours and especially loves rainbows! Robyn saw her first rainbow in the sky a few months ago it was magical to watch her trying to understand it!
Playing dolls (in her own way) with our help is her favourite thing to do! She loves the pretty Disney dolls with their beautiful big eyes and recently loves Poppy the troll with her funny fluffy hair!!
Robyn also loves the garden- listening to all the birds and in the summer watching the bees and butterflies buzzing about.
She is very musical and loves us to help her play drums or shake bells. Music is very calming for Robyn so we listen to music all day long. She’s especially fond of rock music!!!


Biography

Robyn was born by emergency c section after Mum had felt no movements. She was extremely anaemic and Doctors fought for hours to save her life. There had been a foetal maternal hemorrhage (she had lost a lot of her blood into my bloodstream) resulting in hypoxic ischemic encephalopathy (HIE) which is oxygen starvation to the brain. Robyn had an MRI at 3 days old confirming the devastating news of brain damage. After a 2 week stay in SCBU Robyn came home feeding orally.

We weren’t given a diagnosis straight away it was very much wait and see how she developed. At 9 weeks after constant screaming Robyn was diagnosed with silent reflux and we met her paediatrician who first mentioned cerebral palsy.

Robyn fights hard every day and develops at her own pace. She cannot roll, sit unaided, walk or talk and cannot use her hands. But she is amazingly resilient little girl who communicates with us through a combination of body movements, vocal noises and by flashing her cheeky smile! She loves to stand with support and has recently (with help) been able to grasp things in her hands like pens or paintbrushes! She has started to vocalise a few words such as yeah, no, eyes, hair, hand (when playing dolls!) and water.

Robyn feeds orally but is due to have an operation to have a PEG fitted but this will just be for medication and fluids.



Patterns (0 stitchers needed)


1. Awaiting approval:
Climbing goat designs Rainbow butterfly
Stitcher: Jill Smith, Taunton, England
https://www.etsy.com/uk/listing/270852847/rainbow-...

2. Awaiting approval:
Stitching the night away. Brush stroke butterfly
Stitcher: Jenny Elkington, Boston, UK

3. Awaiting approval:
Stitch alley.com Two butterflies in bright pink one above the other
Stitcher: Nicola, St Albans, UK

4. Awaiting approval:
From Etsy - A Climbing Goat Design. The Paint Splatter Butterfly.
Stitcher: Kirsty Smith, Bowburn, UK

5. Awaiting approval:
Awsomepatternstudio Butterfly
Stitcher: Nancy Lowe, Tamworth, UK

6. Awaiting approval:
Climbing Goat Designs Rainbow Maypole
Stitcher: Rosemary Binnie, Macclesfield, UK

7. Awaiting approval:
Cross-stitching.com/sites/default/files/Butterfly cards free chart.pdf A selection of butterflies from a free pdf by cross-stitching.com linked together by a rainbow
Stitcher: Pat Brown, Fareham, England

8. Awaiting approval:
Rainbow with a heart at each end.free internet pattern.
Stitcher: Julie, Portgordon, Scotland

9. Awaiting approval:
DMC Lili Loves Rainbows - a little girl looking at a rainbow.
Stitcher: Leanda Vickers, Oldham , England

10. Awaiting approval:
A kit. Country Companions - Holding a heart
Stitcher: Debbie May, Worthing, West Sussex, UK

11. Awaiting approval:
Www.dailycrossstitch.com Butterflies in rainbow colours
Stitcher: Emily Baker, Rhyl, Denbighshire, Wales

12.Awaiting approval: Label Stitcher: Jeanne, Texas, USA


Squares received

None yet. (Quilt opened on 17th Jan 2018)


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