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LoveQuiltsUK - Ethan J's quilt

Ethan J's quilt    (Quilt Completed)

Born:July 2010
Illness: Ethan has a rare genetic disorder ARX which affects his development and causes seizures.

Theme: Farm animals

Quilt delivered: 19th Sep 2018
Photo of Ethan J

Thank you

Here are the pictures of Ethan (and his baby sister Florence) with his gorgeous quilt! Again thank you so much we love it!



Finished photos


Photo of Ethan Js quilt

Photo of Ethan Js quilt

Photo of Ethan Js quilt

Photo of Ethan Js quilt

Photo of Ethan Js quilt


Quilted by: Leanda

Individual squares

Cross stitch square for Ethan J's quilt
Stitched by: Emma Swift (+)
Submitted: May 2018

Cross stitch square for Ethan J's quilt
Stitched by: Heather (+)
Submitted: May 2018

Cross stitch square for Ethan J's quilt
Stitched by: Heather Joyce (+)
Submitted: Apr 2018

Cross stitch square for Ethan J's quilt
Stitched by: Jan S (+)
Submitted: Jul 2018

Cross stitch square for Ethan J's quilt
Stitched by: Leanda Vickers (+)
Submitted: Apr 2018

Cross stitch square for Ethan J's quilt
Stitched by: Linda (+)
Submitted: Jul 2018

Cross stitch square for Ethan J's quilt
Stitched by: Lisa Toner (+)
Submitted: Jun 2018

Cross stitch square for Ethan J's quilt
Stitched by: Miss Debbie Elkington (+)
Submitted: Apr 2018

Cross stitch square for Ethan J's quilt
Stitched by: Nancy Lowe (+)
Submitted: Jun 2018

Cross stitch square for Ethan J's quilt
Stitched by: Rebecca (+)
Submitted: Jul 2018

Cross stitch square for Ethan J's quilt
Stitched by: Sandra (+)
Submitted: Apr 2018

Cross stitch square for Ethan J's quilt
Stitched by: Sue Torode (+)
Submitted: Jun 2018


Card

Card for Ethan J
Stitched by: Leanne Malcolmson

Biography

Ethan was just 4 days old when he had his first seizure. We ended up back in hospital where Ethan had multiple seizures and needed to be sedated. They began a barrage of tests but couldn't find a cause to start with. I didn't think Ethan would be coming home from the hospital with us.

Ethan had up to 15 seizures a day until he was 2 and a half then bigger scarier seizures every few weeks until now. He was diagnosed with ARX in 2012.
Ethan is 7 years old and is developmentally at the 6 month old stage. He relies on us for all care needs and moving around.

He is the smiliest, happiest person ever who despite his daily battles continues to smile every day. He's now had a Peg fitted for medicines and fluid due to choking risks and a VNS fitted to help with the hard to control seizures.

Ethan enjoys going to school and being surrounded at home by people who adore him, like his step sister and all of his cousins.


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