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LoveQuiltsUK - Sean Jack's quilt

Sean Jack's quilt    (Quilt Completed)

Born:July 2016
Illness: Foxg1syndrome.

Theme: Superheroes

Quilt delivered: 12th Nov 2018
Photo of Sean Jack

Thank you

Just received Sean's quilt, thanks so much



Finished photos


Photo of Sean Jacks quilt

Photo of Sean Jacks quilt


Quilted by: Sandra (Beds)

Individual squares

Cross stitch square for Sean Jack's quilt
Stitched by: C McDonald (+)
Submitted: Jul 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Colleen Rutterford (+)
Submitted: Jun 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Emma Swift (+)
Submitted: Jul 2018

Cross stitch square for Sean Jack's quilt
Stitched by: GEMS (+)
Submitted: Sep 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Jan G (+)
Submitted: Jun 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Jeanne (+)
Submitted: Jun 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Katie (+)
Submitted: Aug 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Katrina (+)
Submitted: Aug 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Magda (+)
Submitted: Sep 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Moira Anne Jeffcoat (+)
Submitted: May 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Nicola (+)
Submitted: Jun 2018

Cross stitch square for Sean Jack's quilt
Stitched by: Sandra (+)
Submitted: May 2018


Card

Card for Sean Jack
Stitched by: Sandra

Biography

Sean was born full term and everything was going well until one morning when Sean was few days old. I was trying to feed him and he went floppy in my arms, blue eyes fixed having a seizure.

This was the start of our journey. Sean had in total around 33 seizures in the space of an hour and a half that morning which lead to us being rushed into high depandancy where a MRI, CT, EEG, ECG, and lumberpuncture tests were all carried out. It was during this time we found out Sean has FOXG1 syndrome - there is only around 233 kids wordwide with this condition which affects mobility, speech and vision. Sean is currently peg fed, non verbal & also wheelchair bound. Due to being non mobile we attend monthly hospital appointments to see neurologists pyhsio etc.

Sean is such a happy smiley boy who loves bright colours and loves to listen to the pentatonix (hallelujah) and nursery rhymes. He attends a special needs nursery twice a week for pyhsio & music therapy.


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