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LoveQuiltsUK - Sean Jack's quilt

Sean Jack's quilt    (Quilt Closed)

Born:July 2016
Illness: Foxg1syndrome.

Theme: Superheroes

Date opened: 23rd May 2018
Date closed: 24th May 2018
Deadline: 26th Sep 2018

Photo of Sean Jack

Child Interests

Seans favourite interests are swimming, music therapy, watching his sensory lights. His favourite colours are bright colours - red, yellow, blue.


Sean was born full term and everything was going well until one morning when Sean was few days old. I was trying to feed him and he went floppy in my arms, blue eyes fixed having a seizure.

This was the start of our journey. Sean had in total around 33 seizures in the space of an hour and a half that morning which lead to us being rushed into high depandancy where a MRI, CT, EEG, ECG, and lumberpuncture tests were all carried out. It was during this time we found out Sean has FOXG1 syndrome - there is only around 233 kids wordwide with this condition which affects mobility, speech and vision. Sean is currently peg fed, non verbal & also wheelchair bound. Due to being non mobile we attend monthly hospital appointments to see neurologists pyhsio etc.

Sean is such a happy smiley boy who loves bright colours and loves to listen to the pentatonix (hallelujah) and nursery rhymes. He attends a special needs nursery twice a week for pyhsio & music therapy.


1.Leisure arts - DC comics superheroes Batman & Robin Batman & Robin 'bursting through'Stitcher: Katie, York, England
In Progress

2.I Love being a Turtle - in the booklet Michaelangelo & I love being a turtle The 4 teenage mutant turtles - 2 standing, one kneeling, one laying downStitcher: Jeanne, Texas, USA
In Progress

3.File of site Spider-Man close up face Stitcher: Colleen rutterford, Spalding , Lincs
In Progress

4.From LQ files Close up of Hulk faceStitcher: Nicola, St Albans, UK
In Progress

5.Superman S on a blue backgroundStitcher: Emma Swift, Aberdeen, UK
In Progress

6.Leisure arts - DC comics superheroes Leisure arts - DC comics superheroes the penguin under umbrellaStitcher: Moira Anne Jeffcoat, Birmingham, England
In Progress

7.DC Comics Superheroes Batman standing with bats Stitcher: Jan, Hull, UK
In Progress

8.I'm going to chart it myself Superhero fighting words i.e. pow, bam etc. Stitcher: Debbie Clarke, Halifax, UK
In Progress

9.Lq files Captain America sheildStitcher: GEMS, UK
In Progress

10.Dc comics superheros cross stitch classics Superman taking flightStitcher: C McDonald, Altrincham, UK
In Progress

11.My son draws up my cross stitch patterns he loves art and keeps him out of trouble Spider man “with great power comes great responsibility”Stitcher: Megan Ross, Retford , Nottinghamshire
In Progress

12.Label Stitcher: Sandra, Shefford, England
In Progress

Squares received

None yet. (Quilt opened on 23rd May 2018)


Card for Sean Jack
Stitched by: Sandra

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