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LoveQuiltsUK - Harry R's quilt

Harry R's quilt    (Quilt Completed)

Born:January 2010
Illness: Dravet Syndrome

Theme: Mickey Mouse Clubhouse

Quilt delivered: 19th Sep 2018
Photo of Harry R

Thank you

I can’t thank you enough each and every one of you for the most beautiful quilt I have ever seen! My heart almost burst then I seen it and he absolutely loves it! We will cherish this and look after it, that I promise!

Thanks you so much, really appreciated!



Finished photos


Photo of Harry Rs quilt

Photo of Harry Rs quilt


Quilted by: Tracey E

Individual squares

Cross stitch square for Harry R's quilt
Stitched by: Ann (+)
Submitted: Jul 2018

Cross stitch square for Harry R's quilt
Stitched by: Beth Cotton (+)
Submitted: Aug 2018

Cross stitch square for Harry R's quilt
Stitched by: Eileen (+)
Submitted: Aug 2018

Cross stitch square for Harry R's quilt
Stitched by: Jan G (+)
Submitted: Jun 2018

Cross stitch square for Harry R's quilt
Stitched by: Jenny Elkington (+)
Submitted: Jun 2018

Cross stitch square for Harry R's quilt
Stitched by: Katie Lacy (+)
Submitted: Jun 2018

Cross stitch square for Harry R's quilt
Stitched by: Kaz Bowen (+)
Submitted: Jul 2018

Cross stitch square for Harry R's quilt
Stitched by: Kirsty Smith (+)
Submitted: Jul 2018

Cross stitch square for Harry R's quilt
Stitched by: Leanda Vickers (+)
Submitted: Jun 2018

Cross stitch square for Harry R's quilt
Stitched by: Nicola (+)
Submitted: May 2018

Cross stitch square for Harry R's quilt
Stitched by: Pippa (+)
Submitted: Aug 2018

Cross stitch square for Harry R's quilt
Stitched by: Sandra (+)
Submitted: May 2018


Card

Card for Harry R
Stitched by: Debbie Elkington

Biography

Harry was a healthy beautiful baby when he was born. When he was only a couple of months old we noticed some very strange jerking but as first time parents we thought this was just what babies done. When harry was 4 1/2 months old on a very warm day, Harry went into a seizure that lasted 25 minutes, initially this was put down to a febrile seizure. He recovered well and within a couple of weeks the seizures got worse, they were getting longer and more violent. At the age of 8 1/2 months old he was then diagnosed with a Dravet Syndrome. A very rare and catastrophic form of epilepsy,.

When he was 10 months old he went onto have a seizure lasting almost 5 hours and ended up on life support and intensive care. He is on a huge cocktail of drugs to try and keep the seizures at bay. We never thought he would see his 1st birthday. Today due to his condition, he is severe global developmental delays, speech delay, Autism, hyper mobility. The list is endless.

Through all his difficulties he is always smiling. My real life super hero.


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