Taya was my 4th child and born 12 weeks prematurely. Right from bringing her home for special care, I knew something was wrong but didn’t expect the diagnosis of cerebral palsy.
Taya is a full time wheelchair user and has no mobility. She is totally reliant on adults. At the age of 5, Taya had her first seizure that was so severe I thought she was dying. That was one of the worse moments of my life, it was the day before our holiday, which had to be cancelled. We just wanted her to be alright, during the next few weeks, she suffered more severe seizures so we had to put her on medication. Taya has a gastrostomy fitted as she tends to have poor weight gain, this was done at the age of 1.
Taya is a very happy, bright and funny girl. She lights up my life and everyone who meets her falls in love with her. She loves making up stories, which she can do on her I pad as she can’t write. She wishes to be an author one day.
When I’ve asked her before if she minds being disabled, she said, I’m lucky really as everyone does everything for me so I’m a bit like the queen. She has always had a brilliant outlook on being disabled and is more worried about her friends missing out on things that she can’t manage herself.
Over the years there have been some tough times and many hospital stays when she was little. Taya spent her first birthday in hospital, which was hard but she’s always been a little fighter.
She is now at secondary school and she has found this transition difficult and challenging but she’s beginning to settle down now.