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LoveQuiltsUK - Ella-Lee's quilt

Ella-Lee's quilt    (Quilt Completed)

Born:May 2004
Illness: Prader Willi Syndrome

Theme: Animals

Quilt delivered: 7th Jan 2019
Photo of Ella-Lee

Thank you

Just to let you know Ella quilt arrived safely today. It’s more amazing than I ever could have imagined. She definitely loves it!



Finished photos


Photo of Ella-Lees quilt


Quilted by: Jan S (Lincs)

Individual squares

Cross stitch square for Ella-Lee's quilt
Stitched by: Celia (+)
Submitted: Jun 2015

Cross stitch square for Ella-Lee's quilt
Stitched by: Embroiders Guild (+)
Submitted: Aug 2017

Cross stitch square for Ella-Lee's quilt
Stitched by: Gilly (+)
Submitted: Jul 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Gilly (+)
Submitted: Jul 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Jan G (+)
Submitted: Nov 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Julie (+)
Submitted: Jul 2017

Cross stitch square for Ella-Lee's quilt
Stitched by: Kaye S (+)
Submitted: Nov 2014

Cross stitch square for Ella-Lee's quilt
Stitched by: Megan (+)
Submitted: Jul 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Nicola (+)
Submitted: May 2015

Cross stitch square for Ella-Lee's quilt
Stitched by: Nicola (+)
Submitted: Oct 2016

Cross stitch square for Ella-Lee's quilt
Stitched by: Pam Codman (+)
Submitted: Mar 2017

Cross stitch square for Ella-Lee's quilt
Stitched by: Ruth Horn (+)
Submitted: Aug 2018


Card

Card for Ella-Lee
Stitched by: Kaz Bowen

Biography

Ella was born in 2004. She was a floppy baby at birth and unable to feed. Initially they tried to say she was just a tired baby but after 6 weeks of continued weight loss she was admitted to hospital. She stayed there for nearly 2 months. During this time Ella was diagnosed with prader Willi syndrome.

She is 14 now and takes every thing in her stride. She is also diagnosed with autism, pituitary gland doesn’t function so all her hormones are artificial including growth hormone. At 14 she is the size of an average 10 year old. She has to take oestrogen to prevent further illness like osteoporosis. She has poor muscle tone so has continued chest infections and similar, weakened inune system, hypermobile joints and many more difficulties. Obviously typically for prader Willi syndrome she food seeks and her world revolves seeking her next meal and how she can get access to food.

Even with everything that life throws at her she always has a smile on her face and loves life. She is fanatical about animals and jigsaw puzzles


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