Ella-Lee's quilt (Quilt Completed) |
| Born: | 2004 |
| Illness: | Prader Willi Syndrome
|
Theme: Animals
Quilt delivered: 7th Jan 2019 |
|
|
|
Thank youJust to let you know Ella quilt arrived safely today. It’s more amazing than I ever could have imagined. She definitely loves it!
|
Finished photos
Quilted by:
Jan S (Lincs)
|
Individual squares
|
Stitched by:
Celia
(+)
Submitted: Jun 2015
|
Stitched by:
Embroiders Guild
(+)
Submitted: Aug 2017
|
|
Stitched by:
Gilly
(+)
Submitted: Jul 2018
|
Stitched by:
Gilly
(+)
Submitted: Jul 2018
|
|
Stitched by:
Jan G
(+)
Submitted: Nov 2018
|
Stitched by:
Julie
(+)
Submitted: Jul 2017
|
|
Stitched by:
Kaye S
(+)
Submitted: Nov 2014
|
Stitched by:
Megan
(+)
Submitted: Jul 2018
|
|
Stitched by:
Nicola
(+)
Submitted: May 2015
|
Stitched by:
Nicola
(+)
Submitted: Oct 2016
|
|
Stitched by:
Pam Codman
(+)
Submitted: Mar 2017
|
Stitched by:
Ruth Horn
(+)
Submitted: Aug 2018
|
|
Card
Stitched by: Kaz Bowen |
|
BiographyElla was born in 2004. She was a floppy baby at birth and unable to feed. Initially they tried to say she was just a tired baby but after 6 weeks of continued weight loss she was admitted to hospital. She stayed there for nearly 2 months. During this time Ella was diagnosed with Prader-Willi syndrome.
She is 14 now and takes every thing in her stride. She is also diagnosed with autism and her pituitary gland doesn’t function so all her hormones are artificial including growth hormone. At 14 she is the size of an average 10 year old. She has to take oestrogen to prevent further illness like osteoporosis. She has poor muscle tone so has continued chest infections a weakened immune system, hypermobile joints and many more difficulties. Obviously, typically for Prader-Willi syndrome, she food seeks and her world revolves around seeking her next meal and how she can get access to food.
Even with everything that life throws at her she always has a smile on her face and loves life. She is fanatical about animals and jigsaw puzzles
|
