Matthew, my gorgeous and strong 7 year old son, has been a warrior from day 1 of his life on this earth. He was born naturally but blue and taken straight to NICU. He was given a 50-50% chance of survival that night. He was on a ventilator for the first 2 weeks of his life, a cooling mat to try and prevent brain damage for 3 days and hooked to various other machines and wires on his little body for almost 3 weeks. All they knew at that point was that he'd had meconium aspiration.
He wasn't diagnosed with CF until he was almost 2 years old due to bowel issues. It should have been picked up on the newborn heelprick test and came as a major shock when I was told he had this genetic life threatening, shortening, limiting illness. I was 36 weeks pregnant with my youngest son (no CF).
Matthew has to take approx 20 tablets, 2 nebulisers, 2 inhalers, as well as various other medications daily. He also has to be admitted to hospital for 2 weeks at times when he has to have IV antibiotics. I'm sure he will love taking his very special quilt in on these hospital stays and show it off to the Drs and nurses. Thank you so much.