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LoveQuiltsUK - Alyssa P's quilt

Alyssa P's quilt    (Quilt Closed)

Illness: Noonan syndrome

Theme: Unicorns

Date opened: 30th Mar 2019
Date closed: 2nd Apr 2019
Deadline: 26th Jul 2019

Photo of Alyssa P

Child Interests

Alyssa loves to play with the LOL dolls.
Her favourite colours are pink, purple and black and she loves anything that sparkles and glitters.


Alyssa was born with a genetic condition called Noonan Syndrome which can affect the whole body including the heart. Alyssa spend the 1st few months of her life in and out of hospital because of feeding issues. At around 8 months old Alyssa has her 1st of many operations, she had pulmonary valve stenosis and needed it correcting. Alyssa struggled to reach her milestones, she couldn't roll over or sit up like many children her age. This was due to low muscle tone, she had and still does have daily physiotherapy. Alyssa uses leg gaitors to help stretch her tight hamstrings and heel cups to keep her feet straight.

When Alyssa was 5 she still wasn't potty trained, ate very small portions, was extremely tired all the time and passed blood when she passed a stool. The Drs rushed her into hospital and ulcerative colitis was diagnosed. Alyssa started medication straight away, over 4 years she has had countless stays in hospital for iv drips with nasty side effects to the meds.
In October last year the decision was made for Alyssa's colon to be removed and an ileostomy bag was going to fitted. We thought that she was going to have a healthy life and a new beginning Unfortunately the bags have become a problem, she has sensitive skin so the bags don't stick very well leaving her skin sore and burnt from the faeces leaking.
In March this year things have taken a turn for the worse. Alyssa was not feeling well so after a visit to the hospital and blood tests the Dr has requested yet another camera to check for Crohn's Disease as Alyssa is in pain when eating. Whilst in hospital she will have an ng tube fitted to help with the extra calories and hopefully put on weight.
Alyssa also went for a routine heart scan and despite the pulmonary valve looking good her aortic valve is beginning to narrow so it's something that needs monitoring and will need operating on in the future.


1.Shannon Christine in March 2019 World of Cross Stitching Enchanting Unicorn- unicorns head with flowers in an ovalStitcher: Roisin, Amersham, England
In Progress

2.AnimalsCrossStitch. Etsy. Floral unicorn.Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

3.LQ files Pastel Unicorn by GemmaStitcher: Val Gilbert, Coningsby , UK
In Progress

4.Https:// Stitching Land flower unicorn Stitcher: Jane Senior, Morecambe, UK
In Progress

5.Tribal Unicorn Head - KLT Charting Unicorn head with tribal patternStitcher: Erica Turner, Penarth, Vale of Glamorgan
In Progress

6.Design by Magic Stitching from Etsy. Head of unicorn with mane and horn in different coloured stripes. Will do in pinks and purples. Stitcher: Diana, Sussex, UK

7.Toy unicorn from Love Quilts Giles on FB Toy unicorn from LQ filesStitcher: Jackie Billington, Birmingham , UK

8.World of Cross Stitching Unicorn on clouds with rainbow behind. Empowering words written above 'be a unicorn in a field of horses'. This is already stitched.Stitcher: Nisha Chauhan, Leicester, UK

9.Https:// Zoe Graham, Halifax, England
In Progress

10.Geometric patterned unicorn face in pinks, purples, blues pattern by velvetponydesignStitcher: Lorna Wray, Huddersfield, UK
In Progress

11.Awesome pattern studio funny unicornStitcher: Grace Bowles, Southampton , UK
In Progress

12.Label Stitcher: Jan G, Hull, UK
In Progress

Squares received

Cross stitch square for Alyssa P's quilt
Stitched by: Diana
Submitted: Apr 2019

Cross stitch square for Alyssa P's quilt
Stitched by: Jackie Billington
Submitted: Apr 2019

Cross stitch square for Alyssa P's quilt
Stitched by: Nisha Chauhan
Submitted: Apr 2019

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