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LoveQuiltsUK - Bonnie-Rose's quilt

Bonnie-Rose's quilt    (Quilt Completed)

Born:2019
Illness: Ventricular septal defect and multifocal epilepsy

Theme: Hearts/Rose/Teddy/Dolls

Quilt delivered: 16th Jul 2020
Photo of Bonnie-Rose

Thank you

Bonnie-Rose loves it, she's very happy



Finished photos


Photo of Bonnie-Roses quilt

Photo of Bonnie-Roses quilt

Photo of Bonnie-Roses quilt


Quilted by: Carol

Individual squares

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Ann (+)
Submitted: Feb 2020

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Cath (+)
Submitted: Aug 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Claire Cole (+)
Submitted: Aug 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Janet T (+)
Submitted: Aug 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Janet T (+)
Submitted: Aug 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Jean (+)
Submitted: Jun 2013

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Jean Harwood (+)
Submitted: Aug 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Katrina (+)
Submitted: Jul 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Kellie (+)
Submitted: Jan 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Nicola (+)
Submitted: Dec 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: Nisha Chauhan (+)
Submitted: Apr 2019

Cross stitch square for Bonnie-Rose's quilt
Stitched by: test (+)
Submitted: Mar 2020


Card

Card for Bonnie-Rose
Stitched by: Leanne

Biography

Bonnie-Rose seemed healthy from birth but around 2 weeks old she started struggling with feeding, sweating, breathless. At a month old I took her into the hospital as I was struggling to get milk down her.

A murmur was found and an ECG was ordered. A large perimembranous ventricular septal defect was found. Her liver was enlarged and her heart was enlarged. She had fluid overload, and she was in congestive heart failure. She was put on medications Spironolactone and furosemide for the fluid overload. It seemed to help but she still struggled to feed, and at 2 months old we took her back to the hospital. The nurses tried but couldn't get enough milk down her so an Ng tube was put in and she was Ng tube fed till she was 1.

Around 9 to 10 months old we noticed head drops we took videos and showed a doctor on ward round. An EEG was arranged. They suspected infantile spasms as she had also regressed. The EEG shown a multifocal seizure disorder with frequent subclinical features which means her brain was constantly seizing in her sleep but we can't see those seizures. She was put on keppra. An MRI was arranged and blood tests were taken to look for genetic causes of epilepsy. The MRI failed as she had a bad reaction to the oral sedation. Her oxygen levels dropped very low and she was put on oxygen. The MRI has been rearranged but they want to do it with anesthesia. We're still waiting for an MRI appointment


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