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LoveQuiltsUK - Reece M's quilt

Reece M's quilt    (Quilt Closed)

Illness: Batten disease CLN2 variant

Theme: Vehicles

Date opened: 4th Apr 2020
Date closed: 12th Apr 2020
Deadline: 26th Aug 2020

Photo of Reece M

Theme details

Vehicles - All types of vehicles including cars, buses, lorries, space rockets, hot air balloons etc.

Child Interests

Favourite colours purple and blue.

Cars, buses, lorries anything with wheels, Peppa pig, music, being outside going nice long walks.


Reece was born healthy and was a happy and content baby.

He was hitting all his milestones and was a typical wee boy always on the go and up to mischief.

At 2 we noticed changes in Reece’s behaviour and his speech was slower than we would have liked so we were referred to Speech and Language Therapy. This was the start of lots of appointments and assessments.

In January 2017 Reece had his first ever seizure while he was at nursery and this resulted in an overnight stay in hospital but the seizure was written off as they could find no cause or reason. And we weren’t too concerned.

In February 2017 Reece was diagnosed as autistic but we got on with life the best we could.

Reece continued to have seizures and by early 2018 Reece was having clusters of up to 8 seizures at a time and was needing hospital treatment on a regular basis.
Because of this we were referred for another EEG which picked up seizure activity so we then went for an MRI scan which picked up further issues so more tests were needed, bloods were taken and at the end of July 2018 we got the awful news that Reece had a rare disease and he would need an eye exam to rule out certain conditions.

Reece’s eye exam in August showed that Reece was severely sight impaired and it confirmed that Reece had Batten's disease.
Since diagnosis Reece has changed so much. Our once happy cheeky boy who was always on the go running about and playing on his trampoline is now unable to walk. Reece is completely blind, has a Peg feeding tube, weekly seizures and many other health issues.


1.Own design. Hot air balloon Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

2.Pegasus Signs, Etsy - Green tractorStitcher: Emma Edwards, Hawkesbury Upton, UK
In Progress

3.Climbing Goat Designs Silhouette racing carStitcher: Nicola, St Albans, UK
In Progress

4.The stitch patterns from Etsy - Yellow excavatorStitcher: Diana, Sussex, UK
In Progress

5.Own design Purple double decker busStitcher: C McDonald, Altrincham, UK
In Progress

6.Cement mixer from EtsyStitcher: Claire Dickie, Aldershot, England
In Progress

7.Own design - breakdown truckStitcher: Pat Brown, Warminster, England
In Progress

8.Front view of blue Volkswagen BeetleStitcher: Emma Swift, Aberdeen, UK
In Progress

9.Etsy - Shop Tube Trio of hot air balloons Stitcher: Shirley, Worthing, Sussex, England
In Progress

10.Old type red car from my filesStitcher: Sylvia, Clacton, England
In Progress

11.Beth Filmer Fire Engine Stitcher: EE(Beth)Filmer, Adelaide, Australia
In Progress

12.Label Stitcher: Jeanne, Texas, USA
In Progress

Squares received

None yet. (Quilt opened on 4th Apr 2020)

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