Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

RSS
LoveQuiltsUK - Ben M's quilt

Ben M's quilt    (Quilt Completed)

Born:2009
Illness: Noonan syndrome

Theme: Harry Potter

Quilt delivered: 25th Nov 2020
Photo of Ben M

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Heather

Individual squares

Cross stitch square for Ben M's quilt
Stitched by: C McDonald (+)
Submitted: Aug 2020

Cross stitch square for Ben M's quilt
Stitched by: Charlotte (+)
Submitted: Oct 2020

Cross stitch square for Ben M's quilt
Stitched by: Erica Turner (+)
Submitted: Aug 2020

Cross stitch square for Ben M's quilt
Stitched by: Heather (+)
Submitted: Aug 2020

Cross stitch square for Ben M's quilt
Stitched by: Jade Kenny (+)
Submitted: Oct 2020

Cross stitch square for Ben M's quilt
Stitched by: Jan G (+)
Submitted: Sep 2020

Cross stitch square for Ben M's quilt
Stitched by: Jodie Balaam (+)
Submitted: Aug 2020

Cross stitch square for Ben M's quilt
Stitched by: Julie Robbins (+)
Submitted: Oct 2020

Cross stitch square for Ben M's quilt
Stitched by: Laura Sedgebeer (+)
Submitted: Nov 2020

Cross stitch square for Ben M's quilt
Stitched by: Lynda Ashcroft (+)
Submitted: Oct 2020

Cross stitch square for Ben M's quilt
Stitched by: Merete (+)
Submitted: Oct 2020

Cross stitch square for Ben M's quilt
Stitched by: Pippa (+)
Submitted: Oct 2020


Card

Card for Ben M
Stitched by: Ruth Horn

Biography

The day Ben was born was when our whirlwind journey began. I had a water birth with him and he required oxygen and suction but we got home with him at 3 days old. At 5 days old he was rushed back into hospital due to a very low temperature and big weight loss. Being my first, I didn't know that him being so sleepy was such an issue but that night he stopped breathing in his sleep. Lumbar punctures, heel pricks, iv antibiotics, jaundice lights, NG tube, oxygen and lots of cuddles were provided by the amazing hospital staff and he was out three weeks later.

Whilst in there, they found out he had a heart murmur and undescended testes and wanted to take bloods to see if there was a reason for all his issues. A little while later, we were told he had Noonan syndrome.

Growing up, Ben has seen cardiologists and endocrinologists every year and currently takes growth hormone injections. These injections have helped with his delayed bone age as well as his growth. He had two small operations to resolve his undescended testes and continues to be seen for his pulmonary valve stenosis.

In 2019, Ben was seen by a psychiatrist for needle anxiety relating to his growth hormone injections. He was then assessed and diagnosed with autism.

At school Ben struggles socially and requires support in the shape of timetables and fiddle toys but thoroughly enjoys maths.

Although he suffers badly with anxiety, he is a happy and lively boy who always faces difficulties head on.


Back to home