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LoveQuiltsUK - Ben M's quilt

Ben M's quilt    (Quilt Closed)

Born:2009
Illness: Noonan syndrome

Theme: Harry Potter

Date opened: 18th Jul 2020
Date closed: 19th Jul 2020
Deadline: 26th Oct 2020

Photo of Ben M

Child Interests

Ben has a passion for trains, Harry Potter and space and likes the colour blue.


Biography

The day Ben was born was when our whirlwind journey began. I had a water birth with him and he required oxygen and suction but we got home with him at 3 days old. At 5 days old he was rushed back into hospital due to a very low temperature and big weight loss. Being my first, I didn't know that him being so sleepy was such an issue but that night he stopped breathing in his sleep. Lumbar punctures, heel pricks, iv antibiotics, jaundice lights, NG tube, oxygen and lots of cuddles were provided by the amazing hospital staff and he was out three weeks later.

Whilst in there, they found out he had a heart murmur and undescended testes and wanted to take bloods to see if there was a reason for all his issues. A little while later, we were told he had Noonan syndrome.

Growing up, Ben has seen cardiologists and endocrinologists every year and currently takes growth hormone injections. These injections have helped with his delayed bone age as well as his growth. He had two small operations to resolve his undescended testes and continues to be seen for his pulmonary valve stenosis.

In 2019, Ben was seen by a psychiatrist for needle anxiety relating to his growth hormone injections. He was then assessed and diagnosed with autism.

At school Ben struggles socially and requires support in the shape of timetables and fiddle toys but thoroughly enjoys maths.

Although he suffers badly with anxiety, he is a happy and lively boy who always faces difficulties head on.



Patterns


1.Niffler pattern from lq filesStitcher: Jodie Balaam, Lawshall, England
Received

2.LQ files. Merete's design The golden trioStitcher: Jan G, Hull, UK
In Progress

3.DMC Mango Practique book Harry holding out his wandStitcher: Heather, Littleborough, England
Received

4.LQ files Hagrid with lampStitcher: Julie Robbins, Bromsgrove , UK
In Progress

5.Kawaii Harry and Hedwig by Emily Jones from the LQ filesStitcher: Pippa, Surrey, UK
In Progress

6.Red square from LQ files Hogwarts Express sign with 9 3/4 Stitcher: Lynda Ashcroft, Weston-super-Mare, England
In Progress

7.Mango pratique point de croix Harry flying to catch the golden snitchStitcher: C McDonald, Altrincham, UK
Received

8.Hufflepuff Sorting Hat from LQ FilesStitcher: Erica Turner, Penarth, Wales
Received

9.Own design for LQ, Dumbledore and FawkesStitcher: Merete, Allerød, Denmark
In Progress

10.LQ files Mischief Managed in BlueStitcher: Jade Kenny, Ballinasloe, Ireland
In Progress

11.From LQ files I solemnly swear...Stitcher: Laura Sedgebeer, Bridgend, Wales
In Progress

12.Label Stitcher: Charlotte, Nottingham, UK
In Progress


Squares received

Cross stitch square for Ben M's quilt
Stitched by: Jodie Balaam
Submitted: Aug 2020

Cross stitch square for Ben M's quilt
Stitched by: Heather
Submitted: Aug 2020

Cross stitch square for Ben M's quilt
Stitched by: C McDonald
Submitted: Aug 2020

Cross stitch square for Ben M's quilt
Stitched by: Erica Turner
Submitted: Aug 2020



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