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LoveQuiltsUK - Edith W's quilt

Edith W's quilt    (Quilt Completed)

Born:2010
Illness: Cystic Fibrosis

Theme: Flowers, hearts and butterflies

Quilt delivered: 7th Jan 2021
Photo of Edith W

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Heather

Individual squares

Cross stitch square for Edith W's quilt
Stitched by: Alisha (+)
Submitted: Nov 2020

Cross stitch square for Edith W's quilt
Stitched by: Ann (+)
Submitted: Aug 2020

Cross stitch square for Edith W's quilt
Stitched by: Anne (+)
Submitted: Sep 2020

Cross stitch square for Edith W's quilt
Stitched by: Claire Glover (+)
Submitted: Sep 2020

Cross stitch square for Edith W's quilt
Stitched by: Heather (+)
Submitted: Oct 2020

Cross stitch square for Edith W's quilt
Stitched by: Jan S (+)
Submitted: Nov 2020

Cross stitch square for Edith W's quilt
Stitched by: Jenny Elkington (+)
Submitted: Aug 2020

Cross stitch square for Edith W's quilt
Stitched by: Leanda Vickers (+)
Submitted: Aug 2020

Cross stitch square for Edith W's quilt
Stitched by: Nicola (+)
Submitted: Oct 2020

Cross stitch square for Edith W's quilt
Stitched by: Paula Dewar (+)
Submitted: Sep 2020

Cross stitch square for Edith W's quilt
Stitched by: Sharon (+)
Submitted: Sep 2020

Cross stitch square for Edith W's quilt
Stitched by: Sue Torode (+)
Submitted: Sep 2020


Card

Card for Edith W
Stitched by: Jodie Balaam

Biography

As our firstborn and with no indications during pregnancy, it was a complete shock to be called into the hospital when our daughter was 3 weeks old and told that she had been diagnosed from the heelprick, with the inherited life limiting condition Cystoc Fibrosis. Although I knew what the condition was, neither I nor my husband had any idea what this would mean for our daughter or how it would change our lives so fundamentally. Shock and fear first hit, then the guilt we'd 'given it' to her. In hindsight, in the first 3 weeks there were signs; the inability to feed the first few days she was born as she was so lacking in energy, the multiple feeding soon as she did start taking milk, the smelly, explosive nappies and the weight gain was not as expected.

Edith was quickly given pancreatic enzymes and vitamin supplements. We were taught manual physio to clear her lungs and nebulisers soon followed. Edith coughs, and clears her lungs a lot, especially at night when flat which disrupts her sleep and fatigues her daily.

Edith needs to eat a LOT, and struggles to be at a normal weight. She gets continual lung infections and has multiple antibiotics and several 2 week hospital stays for IV antibiotics, a Bronchoscopy and intensive physio to clear her lungs and infections. Edith's daily regime is over 40 tablets and intensive treatments and she has to miss school and many activities her friends are allowed.


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