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LoveQuiltsUK - Jack D's quilt

Jack D's quilt    (Quilt Closed)

Born:2010
Illness: NKH Nonketotic Hyperglycinemia

Theme: At the beach

Date opened: 9th Dec 2020
Date closed: 13th Dec 2020
Deadline: 26th Apr 2021

Photo of Jack D

Theme details

At the beach - The beach - sandcastles, lighthouses, beach huts and flags/kites etc.



Child Interests

Jack likes shades of blue and turquoise. He likes VW Beetle cars and campervans. He likes going on holiday in our caravan and enjoys sunny days being on the beach, sandcastles, lighthouses, beach huts and flags/kites.

Jack likes walks outside in the fresh air along the coast or through the woods looking up at tree branches.


Biography

Our beautiful boy Jack was born in 2010 weighing a great 8lbs 12oz. He was very quiet at birth and over the next couple of days he became more quiet, hadn't opened his eyes and had poor feeding. He was taken in to Special Care for some tests and immediately ventilated and a team from Newcastle were called to transport Jack to intensive care in a much larger hospital. Jack remained ventilated and largely unresponsive. He had many tests and then at 8 days old we first heard his diagnosis of NKH. Jack lacks the enzyme which breaks down the amino acid glycine so unfortunately glycine builds up to toxic levels in his blood and fluid surrounding the brain which leads to uncontrollable seizures and severe development delay. We were told the very worst news that he was not expected to breathe on his own and would not survive. Jack however had other plans and pulled the ventilation out at two weeks old showing us his determination and ability to breathe.

Jack is severely affected by NKH but he is a happy boy and now has a healthy little sister and brother who love him dearly.

Jack continues to shield due to risks of Covid19 but before Coronavirus he attended school 3 days a week, he enjoys the sensory room and hydrotherapy pool.

We have frequent hospital stays with Jack often due to seizures or respiratory illness. He is well known and extremely well cared for on the Children's ward in Carlisle.



Patterns


1.Bothy Threads VW Fun.Stitcher: Leanda Vickers, Oldham , England
Received

2.Cross Stitch Crazy circa 2008 Lucie Heaton design of 2 crabs building a sandcastleStitcher: Heather, Littleborough, England
In Progress

3.Https://www.artecyshop.com/ 3 beach huts - will add some birds or clouds up higher to make it tallerStitcher: Jeanne, Pennsylvania, USA
Received
https://www.artecyshop.com/

4.Design by Emma Congdon SUN SEA Stitcher: Sharon, Kenilworth, UK
In Progress

5.Beside the Sea by Tiny Modernist on EtsyStitcher: Nicky, Mytchett, UK
In Progress

6.Beach motifs Stitcher: Jodie Balaam, Lawshall, England
Received
https://www.tinymodernist.com/products/beach-motif...

7.Own design ... Campervan on beach with lighthouse in the background. Stitcher: Pat Brown, Warminster, England
In Progress

8.Sand, Sea and Cross Stitch by Anna Field Selection of beach huts/houses, sailboat and flagsStitcher: Deborah Found-Bloodworth, Uxbridge, Middx, UK
In Progress

9.Own design using charts from WOXS 270 and Cross stitcher mag July 2011 Beach huts with beach scene in frontStitcher: Ann, Billericay, UK
Received

10.Three Surfboards - EtsyStitcher: Jodi Maple, Niagara Park, Australia
In Progress
https://www.etsy.com/au/listing/507517850/three-su...

11.Etsy ArtbyMariana Beach cabin cross stitch. Bright colourful beach scene in turquoise, purple and orange Three beach huts withe writing life is a beach. Will only do two to ensure the right size for LQStitcher: Gabriele Pearson, Cromarty, UK
In Progress

12.Label Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress


Squares received

Cross stitch square for Jack D's quilt
Stitched by: Leanda Vickers
Submitted: Jan 2021

Cross stitch square for Jack D's quilt
Stitched by: Jeanne
Submitted: Jan 2021

Cross stitch square for Jack D's quilt
Stitched by: Jodie Balaam
Submitted: Dec 2020

Cross stitch square for Jack D's quilt
Stitched by: Ann
Submitted: Dec 2020



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