Wowee... Skyla's quilt has arrived :) it is absolutely beautiful, such bright, vibrant fabric, and stunning detail on the squares. Cannot thank you all enough for your time and effort.
Sadly, Skyla passed away in February 2018 :(
Skyla was born at 32 weeks by Emergency C-Section, as she had stopped moving. The pregnancy had been perfect and there were no signs of any problems.
Following her birth she spent 6 weeks in SCBU, where her brain damage was discovered.
In her 3 and a half years, she has had numerous hospital admissions, mainly for her epilepsy, which is severe and uncontrolled. Skyla has 400 seizures daily and often goes in to status. Her epilepsy, combined with her brain damage means she will never be able to roll/crawl/sit/walk/talk. She has the developmental age of a 6 week old, and she is unlikely to make it to her teenage years.
Despite all this, she is a happy little girl, giving smiles when she hears her sister's voice, enjoys music and cuddles.