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LoveQuiltsUK - Mylo G's quilt

Mylo G's quilt    (Quilt Closed)

Illness: Multiple hereditary osteochondromatosis

Theme: Owls and sloths

Date opened: 30th Jun 2021
Date closed: 21st Jul 2021
Deadline: 26th Oct 2021

Photo of Mylo G

Theme details

Owls and sloths - He likes Graffiti-style fonts, so if we could get that in on the label, and also a few computer gaming items, that would be great. Cute/realistic style owls and sloths preferred (rather than outline/geometric/mandala/tribal)

Child Interests

Mylo is an avid gamer, always has a controller in his hand. He loves animals especially owls which have always been his favourite and sloths too - we jokingly call him a sloth as he is very laid back!
Mylo loves bright colours and graffiti especially in blues and greens. Mylo likes going to the beach to kayak. He loves Guardians of the Galaxy, especially Groot, he collects anything with Groot on.
Mylo also likes skateboarding and camping.


Mylo was diagnosed with multiple hereditary osteochondromatosis at the age of 2 years old following a full skeletal due to frequent falls.
This is a rare bone tumour disease affecting 1 in 50,000 people, it causes Mylo chronic pain and fatigue ending in countless operations.
Mylo has always had communication difficulties and will hide under tables or in his arms when he struggles with his emotions. Mylo also likes a structured routine and is strict on lateness, often refusing to leave the house to go out if his times are not met. Socially Mylo feels that his friends don’t like him but the reality is Mylo is very black and white and doesn’t always understand his friend’s “banter” and jokes. Mylo’s autistic traits are linked to his MHE which are always being reviewed by a paediatrician.

Mylo had his 3rd leg operation with an epidural where everything seemingly went well. On arrival home Mylo would attempt to weight bear on his legs but this caused Mylo to pass out, be sick and have a headache, all of which are signs of a spinal fluid leak.
Here is where we were rushed back into hospital for a blood patch operation, and MRI and where Mylo had to lie completely flat for 48 hours to see if it worked. Unfortunately it didn’t so the process was repeated and it was second time lucky. The only remaining symptom is that Mylo now has partial paralysis to his right leg below the knee.

Three years ago Mylo had a month long episode where he woke every morning with vertigo and was instantly sick with a strong headache.
Mylo was admitted into hospital for an emergency MRI of his brain as they suspected he had a tumour. Following the results everything was clear but Mylo was still having these sickness and spinning episodes daily. We saw a specialist consultant in the hospital who diagnosed Mylo with cyclical vomiting syndrome. He follows a careful diet and avoids anything that contains caffeine, chocolate and cheese and the symptoms are managed well now.

Mylo has always suffered with terrible foot pain that we put down to the bone tumours in his legs and ankles. Following an X-ray of his feet only two years ago it was discovered that his heels were very splintered and hadn’t formed, he now wears jelly heel cups from his orthotics team and these have helped ease the pain.

Mylo’s 12th operation has just happened only three weeks ago. Mylo has had a corrective osteotomy to his right arm which has already been operated on three times before. He has a plate in the radius and an external fixator to lengthen his bowed ulna which has shortened due to deformity caused by his MHE.
We have just finished turning the key at home and he is currently fighting off a pin infection which we have been told is very common.


1.Stitcher: Jenny, Rushden, UK

2.Https:// 3 cute owls and leavesStitcher: Jill Smith, Taunton, England

3.Climbing Goat Designs rainforest sloth.Stitcher: Leanda Vickers, Oldham , England

4.Sloth cross stitch pattern from etsyStitcher: Jodie Balaam, Lawshall, England

5.LaSilvaDesigns on Etsy Mother and baby sloth on a branchStitcher: Jeanne, Pennsylvania, USA
In Progress

6.Cross Stitcher July 21 Sloth sampler by Maria DiazStitcher: Jan G, Hull, UK

7.Twilleys kit Realistic owlStitcher: Nicola, St Albans, UK
In Progress

8.From AwesomePatternStudio Cartoon Owl on snowy branchStitcher: Lorna Simpson, Southampton, UK

9.'What a Hoot' by Lucie Heaton CrossStitcher Summer 2015 issue 294 Five owls sitting on branches of a treeStitcher: Jennifer Urquhart, Glasgow, Scotland
In Progress

10.White Phoenix Design on Etsy - Cartoon style cute brown owl Stitcher: Kay, Doncaster, UK

11.World of cross stitching 217 4/6 cute owls Stitcher: Christine Mennie, Aberdeen, UK

12.Label Stitcher: Sarah Jackson-Cartledge, Durham, UK
In Progress

Squares received

Cross stitch square for Mylo G's quilt
Stitched by: Jenny
Submitted: Apr 2021

Cross stitch square for Mylo G's quilt
Stitched by: Jill Smith
Submitted: Jun 2021

Cross stitch square for Mylo G's quilt
Stitched by: Leanda Vickers
Submitted: Aug 2021

Cross stitch square for Mylo G's quilt
Stitched by: Jodie Balaam
Submitted: Jul 2021

Cross stitch square for Mylo G's quilt
Stitched by: Jan G
Submitted: Jul 2021

Cross stitch square for Mylo G's quilt
Stitched by: Lorna Simpson
Submitted: Aug 2021

Cross stitch square for Mylo G's quilt
Stitched by: Kay
Submitted: Aug 2021

Cross stitch square for Mylo G's quilt
Stitched by: Christine Mennie
Submitted: Sep 2021

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