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LoveQuiltsUK - Lottie S's quilt

Lottie S's quilt    (Quilt Closed)

Illness: West Syndrome/ deaf in both ears/heart disease/ failure to thrive/severe global development delay/hypermobile/GORD

Theme: Hearts and Rainbows

Date opened: 24th Jul 2021
Date closed: 24th Jul 2021
Deadline: 26th Nov 2021

Photo of Lottie S

Theme details

Hearts and Rainbows - Pink is a favourite colour

Child Interests

Lottie's favourite colour is pink and she loves anything sparkly and glittery that catches her eye.

Lottie loves bright lights and anything that is soft and cuddly. She is very attached to cuddly bears or animals.


Lottie was born a very tiny 5lb 8oz. Since birth she has had troubles with severe vomiting of stomach acid. At 3 weeks old she was diagnosed as being deaf in both ears. That absolutely broke out hearts.
Lottie has always struggled to gain weight or maintain the small amount of weigh she did gain.
And at the age of 22 months she weighs a mere 17lb. She is fed through a NG tube since her tonic/clonic seizure back in January.
Lottie has never reached any major milestones. After her major seizure Lottie regressed and lost the ability to do the things she was able to do before. Even the simple task of being able to feed.
After an EEG in January she was diagnosed as having a severe and rare form of epilepsy called West Syndrome/Infantile spasms.
Lottie is unable to do anything by herself, is non-verbal, really struggles with eye contact and requires round the clock care.
Lottie's epilepsy is medicated but she still has seizures every day.
We have been informed by her neurology consultant that she may never gain the skills she needs to fully thrive. With the West syndrome being severe her seizure are only going to get worse as she grows.
She undergoes EEG's every 8-12 weeks and is currently waiting an MRI scan to detect any brain damage from her major seizure as she was fitting for such a long time. Paramedics struggled to bring her seizure under control which resulted in a very long stay mid covid in hospital. It was a frightening time in our lives as she lay in the hospital bed lifeless from so much medication and steroid treatment.
But our little tough cookie pulled through thankfully and despite everything our tiny warrior has been through on her good days she is so full of giggles and smiles.
Her good days are few and far between so we treasure every single smile and every giggle.
She's such a cuddle monster! She loves her snuggles so much.


1.Rainbow with white heart, LQ fileStitcher: Angela, New Zealand
In Progress

2.Climbing Goat designs chequered rainbow heartStitcher: Grace Bowles, Southampton , UK
In Progress

3.MyLovelyCrossStitch Modern flower heart. Stitcher: Jenny Elkington, Boston, UK

4.Love quilt file Heart in rainbow colours Stitcher: Carol West , Thetford, Norfolk, UK
In Progress

5.Valentine free cross stitch pattern. Heart with outline of another small heart at the bottom Heart with outline of another small heart at the bottom in pink variegated threadStitcher: Gabriele Pearson, Cromarty, UK
In Progress

6.Climbing Goat Designs Rainbow heart of heartsStitcher: Eileen, Newcastle, UK

7.Flower Heart by AnimalsCrossStich, EtsyStitcher: Alison Forsyth, Aberdeen , UK
In Progress

8.Bohemian Rainbow Navy Cross Stitch Pattern. (Design is in blues, will change to pinks) Rainbow with heart and dots (and some extra additions)Stitcher: Helen Irwin, Hull, UK
In Progress

9.Pattern by Happinesst from Etsy. Tree with little hearts on it. Stitcher: Diana, Sussex, UK

10.LQUK files, created by Rebecca Powers Rainbow "When it rains, look for rainbows ..." Stitcher: Sharon, Kenilworth, UK

11.Climbing goat designs Rainbows are my favourite colour Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

12.Label Stitcher: Sarah, St. Albans, UK

Squares received

Cross stitch square for Lottie S's quilt
Stitched by: Sarah
Submitted: Aug 2021

Cross stitch square for Lottie S's quilt
Stitched by: Jenny Elkington
Submitted: Sep 2021

Cross stitch square for Lottie S's quilt
Stitched by: Eileen
Submitted: Aug 2021

Cross stitch square for Lottie S's quilt
Stitched by: Diana
Submitted: Sep 2021

Cross stitch square for Lottie S's quilt
Stitched by: Sharon
Submitted: Aug 2021


Card for Lottie S
Stitched by: Marilyn Foyle

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