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LoveQuiltsUK - Rhiannon C's quilt

Rhiannon C's quilt    (Quilt Closed)

Born:2007
Illness: Ehlers danlos syndrome

Theme: Cats and Kittens

Date opened: 4th Jun 2022
Date closed: 12th Jun 2022
Deadline: 26th Oct 2022

Photo of Rhiannon C

Child Interests

Cats, musicals like Hamilton, Six, Footloose. The colours purple, yellow.


Biography

Rhiannon struggled from birth, quickly dropping to just below the 2nd centile in weight. She was clumsy and accident prone, crushing her big toe and breaking her elbow before she was two. At three, she first started physiotherapy for her ankles which could not support her walking. By six, she was still unable to walk any distance and was diagnosied with Elhers Danlos Syndrome. This is a genetic condition that affects the integrity of the collagen and as such can weaken soft tissue associated with organs, muscles, ligaments and skin.

From Rhiannon's diagnosis her Dad's doctors were able to diagnose him and help him understand why he had gradually gone from being a fitness instructor to being considerably disabled. In 2013, he needed major brain and spinal surgery to save his life which was very distressing for Rhiannon and her two brothers. Her eldest brother has also since been diagnosed and her younger is in the process of being diagnosed.

After a three week rehab program at GOSH, Rhiannon began walking short distances. Now, at fifteen she suffers with chronic pain and fatigue and uses an electric wheelchair to help her access education. She is experiencing intestinal failure due to the muscles in her intestinal tract not contracting properly and is awaiting surgery to have a port fitted to enable her to clear out her intestines manually. She suffers frequent dislocations, bladder issues, and seems to be following her Dad in terms of issues with her spine.

Life is an endless round of dr appointments, as each symptom is treated independently. More recently, regular hospital visits for decompaction have made keeping up with school work difficult. As we as a family begin the process of more surgery for Rhiannon's Dad we cannot be more proud of how Rhiannon is dealing with the situation and her own health issues.



Patterns


1.Climbing goat designs Black cat in a heart.Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received

2.LQ files Rainbow cat 3Stitcher: Rachel, London, UK
In Progress

3.Margaret Sherry cross stitch collection Forever friends. Two cats on a swing Stitcher: Jan G, Hull, UK
Received

4.Ginger Cat with butterfly from cross stitch pattern netStitcher: Jodie Balaam, Lawshall, England
Received
https://www.cross-stitch-pattern.net/kitten-15-120...

5.Cross stitcher Oct 2019 night and day. Cat with a umbrella. Will add to it to make larger. Stitcher: Emma Robson, Doncaster, England
Received

6.Pending Stitcher: Lindsay, Northwich, UK
In Progress

7.Margaret Sherry xstitch collection Enjoy the Ride Three cats on a bicycleStitcher: Ann, Billericay, UK
Received

8.Climbing goat Cat heart with pawprints. Will use favourite coloursStitcher: Kaz Bowen, Wakefield, UK
Received
https://www.etsy.com/ie/listing/723287267/cat-hear...

9.Https://www.etsy.com/uk/listing/744926563/geometric-animal-cross-stitch-pattern Geometric/polygonal cat faceStitcher: Kristy Cole, Billericay, Essex, UK
Received
https://www.etsy.com/uk/listing/744926563/geometri...

10.CrossStitchPaterns-Etsy https://www.etsy.com/uk/listing/675341418/cross-stitch-cat-cross-stitch-pattern Cross Stitch Cat Cross Stitch Pattern Galaxy Animals Moon and StarsStitcher: Sandra, Shefford, England
Received

11.Climbing Goats catStitcher: Ali, Newcastle upon Tyne, UK
In Progress

12.Label Stitcher: Maz Spruce, Abingdon, UK
Received


Squares received

Cross stitch square for Rhiannon C's quilt
Stitched by: Maz Spruce
Submitted: Jul 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Miss Debbie Elkington
Submitted: Jun 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Jan G
Submitted: Jul 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Jodie Balaam
Submitted: Jun 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Emma Robson
Submitted: Jul 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Ann
Submitted: Aug 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Kaz Bowen
Submitted: Jul 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Kristy Cole
Submitted: Sep 2022

Cross stitch square for Rhiannon C's quilt
Stitched by: Sandra
Submitted: Jul 2022



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