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LoveQuiltsUK - Nial M's quilt

Nial M's quilt    (Quilt currently being assembled)

Born:2015
Illness: Mitochondrial disease

Theme: Sealife

Quilt currently being assembled
Photo of Nial M

Biography

Nial was born at 30 weeks. He spent the first 12 weeks in special care. Nial was tube fed, but unable to grow. He then had a peg placed at 2 years old. At this time he had a sibling diagnosed with mitochondrial disease and began genetic testing. Soon after the peg Nial's body began to shut down, his gut and bowels were becoming damaged and the only course of action left was TPN. He was unable to come off TPN from 24hrs as he was found that his blood sugars drop within 2 mins to a dangerous level. TPN can affect/will affect his organs, this might take many years but there is no further treatment available.

He hasn’t grown in weight in the pass two years and is currently in and out of hospital with infections as he hasn’t the strength to fight minor illness. He has had sepsis many times which has damaged his body further. His kidneys are affected with kidney stones and reflux which is damaging them further and he needs help to empty his bladder.

He can’t talk, walk or sit unaided and there is no cure just plenty of love and making memories with his family around him. Nial this month has just had another month stay in hospital due to a kidney infection that reached his TPN line and turned to sepsis. His little body has been through more than any adult would go through, constantly having bloods daily, all medication is iv and he's constantly attached to a machine. He is unable to attend school or visit places in case of infection and leads a very settled life. Having a blanket that could wrap security around him would be a beautiful item.



Patterns


1.Stitcher: Leanne Malcolmson, Romsey, UK
Received

2.Stitcher: Anne, Sandefjord, Norway
Received

3.Ciococrossstitch on Etsy Colourful sea turtle Stitcher: Heather, Littleborough, England
Received

4.Monk Seals from Endangered YoungunsStitcher: Roisin, Amersham, England
Received

5.Bothy Threads kit. Clowning Around.Stitcher: Nicky, Mytchett, UK
Received

6.Stoney creek sea babies Octopus Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received

7.Endangered Younguns Sea ottersStitcher: Jan G, Hull, UK
Received

8.Swimming School by Bothy Thread (Sea turtles and babies)Stitcher: Val Gilbert, Coningsby , UK
Received

9.Whale with bubbles of etsyStitcher: Jodie Balaam, Lawshall, England
Received
ttps://www.etsy.com/uk/listing/773743868/whale-cro...

10.Dolphin with shoals of fish Stitcher: Marie, Yeovil, UK
Received

11.2 bright coloured fish Stitcher: Nicola, Elland, UK
Received

12.Label Stitcher: Jenny Elkington, Boston, UK
Received


Squares received

Cross stitch square for Nial M's quilt
Stitched by: Jenny Elkington
Submitted: Jul 2022

Cross stitch square for Nial M's quilt
Stitched by: Leanne Malcolmson
Submitted: Jul 2020

Cross stitch square for Nial M's quilt
Stitched by: Anne
Submitted: Nov 2021

Cross stitch square for Nial M's quilt
Stitched by: Heather
Submitted: Sep 2022

Cross stitch square for Nial M's quilt
Stitched by: Roisin
Submitted: Oct 2022

Cross stitch square for Nial M's quilt
Stitched by: Nicky
Submitted: Oct 2022

Cross stitch square for Nial M's quilt
Stitched by: Miss Debbie Elkington
Submitted: Aug 2022

Cross stitch square for Nial M's quilt
Stitched by: Jan G
Submitted: Jul 2022

Cross stitch square for Nial M's quilt
Stitched by: Val Gilbert
Submitted: Jul 2022

Cross stitch square for Nial M's quilt
Stitched by: Jodie Balaam
Submitted: Jul 2022

Cross stitch square for Nial M's quilt
Stitched by: Marie
Submitted: Sep 2022

Cross stitch square for Nial M's quilt
Stitched by: Nicola
Submitted: Aug 2022


Card

Card for Nial M
Stitched by: Leanne Malcolmson

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