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LoveQuiltsUK - Hayden H's quilt

Hayden H's quilt    (Quilt Closed)

Born:2008
Illness: Duchenne Muscular Dystrophy

Theme: Star Wars

Date opened: 13th Aug 2022
Date closed: 20th Aug 2022
Deadline: 29th Dec 2022

Photo of Hayden H

Child Interests

Star Wars, Lego, space, Scouts, karate, cookery/food.
Favourite colour is blue.


Biography

Hayden was born on a lovely Spring day in May 2008. It was very dramatic as I went into early labour whilst on family break at Center Parcs to celebrate my birthday. We then had to rush to the hospital and arrived with about 30 minutes to spare! Other than that his early months were normal and gave us no cause for concern.

However, as he approached his first birthday, we started to get concerned because he was missing his major milestones by a long way. He was almost one but could barely crawl let alone walk. Fast forward to the approach of his fourth birthday after two years of being told that he had 'lax ligaments' and that 'special boots might help', it was clear that there was still something wrong.

He'd been walking since just before his second birthday, but his walk had a strange gait to it, and he struggled to stand up from sitting on the floor. So we had him checked again. This time they did a blood test and discovered an extremely high level of an enzyme called Creatine Kinase (or CK). This is a strong indication of Duchenne Muscular Dystrophy and Hayden's diagnosis was fully confirmed by a genetic test.

That was ten years ago. Hayden has spent his life since then going to and from various hospitals, mostly Great Ormond St, taking part in clinical trials, being tested, undergoing rigorous physiotherapy, as well as trying to have a normal childhood with school, going to Scouts, (which he loves),karate (purple belt) and being seriously into Lego and Star Wars.

He is a fun loving, happy go lucky chap who refuses to let his condition rule his life. Unusually he is still walking and only occasionally uses his wheelchair. He puts up with the daily grind of medication and exercises with a stoic acceptance that would put most adults to shame.

Finally, thank you so much for making a quilt for him. He finds huge comfort in snuggling down into a quilt or blanket with a good book. I think they make him feel safe and I know that his quilt will be cherished.




Patterns


1.Star Wars cross stitch by John loman and Rhys Turton Darts Vader black figure with red light sabreStitcher: Jodie Balaam, Lawshall, England
Received

2.Chewbacca from LQ filesStitcher: Sam, Leicestershire, UK
In Progress

3.Hans solo from LQ FilesStitcher: Pippa, Surrey, UK
Received

4.LQ files CP3O 6 shades from LQ filesStitcher: Lorna Simpson, Southampton, UK
Received

5.Death Vader with Lightsabre from LQ files Stitcher: Emily Jones, Swansea, UK
Received

6.Jedi Master Yoda from Love Quilts files Stitcher: Jackie, York, England
In Progress

7.LQ files General GrieviousStitcher: Nicola, St Albans, UK
Received

8.Princess Leia from LQ filesStitcher: Julie, Anglesey, Wales
Received

9.R2D2 from LQ filesStitcher: Helen, Swindon, UK
Received

10.BB8 from LQ filesStitcher: Sharon, Doncaster, UK
Received

11.From LQ files Star Wars LogoStitcher: Lindsay, Northwich, UK
In Progress

12.Label Stitcher: Leanda Vickers, Oldham , England
Received


Squares received

Cross stitch square for Hayden H's quilt
Stitched by: Leanda Vickers
Submitted: Sep 2022

Cross stitch square for Hayden H's quilt
Stitched by: Jodie Balaam
Submitted: Aug 2022

Cross stitch square for Hayden H's quilt
Stitched by: Pippa
Submitted: Nov 2022

Cross stitch square for Hayden H's quilt
Stitched by: Lorna Simpson
Submitted: Oct 2022

Cross stitch square for Hayden H's quilt
Stitched by: Emily Jones
Submitted: Aug 2022

Cross stitch square for Hayden H's quilt
Stitched by: Nicola
Submitted: Sep 2022

Cross stitch square for Hayden H's quilt
Stitched by: Julie
Submitted: Oct 2022

Cross stitch square for Hayden H's quilt
Stitched by: Helen
Submitted: Nov 2022

Cross stitch square for Hayden H's quilt
Stitched by: Sharon
Submitted: Oct 2022


Card

Card for Hayden H
Stitched by: Sandra

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