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LoveQuiltsUK - Edith-Rose's quilt

Edith-Rose's quilt    (Quilt Closed)

Born:2021
Illness: Unknown

Theme: Disney Princesses

Date opened: 31st Aug 2022
Date closed: 8th Sep 2022
Deadline: 26th Jan 2023

Photo of Edith-Rose

Theme details

Disney Princesses - Please include Moana. Mickey Mouse on the label



Child Interests

Edith likes Hey Dugee, In The Night Garden and Bluey.
She loves bright colours.


Biography

Edith-Rose was born by emergency section, at 2 weeks old she became unwell and stopped feeding. Edith was admitted to Royal Blackburn Hospital with suspected meningitis. Edith-Rose had a lumbar puncture to confirm the diagnosis and Blackburn worked alongside Manchester in deciding the best way to care for her.

After 4 days in Blackburn Edith was showing no signs of getting better and her CSF levels were incredibly high. She was transferred to Manchester Children's Hospital and admitted, going straight to ICU. Edith remained in hospital for 9 weeks where a scan revealed that the meningitis had left her with brain damage and she was diagnosed with hydrocephalus. Edith had an EVD inserted in the hope that she would be able to control her fluid levels independently. Sadly she was unable to and after 11 brain operations a 12th operation was needed to insert a VP shunt which is permanent and allows Edith to stay with us.

Edith has had further operations due to the growth of cysts that grew on the left side of her brain. After several operations to try and remove these this failed which led to Edith having to have her shunt removed due to infection and a temporary EVD fitted again for a further 7 weeks. After 7 weeks Edith was able to have her VP shunt refitted.

From all the operations Edith has now got severe brain damage and requires 24/7 care. She has been diagnosed with global development delay and now requires weekly physio and play therapy sessions. Edith is also under assessment for potential ASD.



Patterns


1.Own design princess jasmineStitcher: Jodie Balaam, Lawshall, England
Received

2.Close up ariel face Stitcher: Nicola, Elland, UK
Received

3.Disney Hachette Magazine Issue 55 Princess Tiana holding a frogStitcher: Nicola, St Albans, UK
Received

4.LQ FILES Moana at sunset (simpler)Beth FilmerStitcher: Christine Mennie, Aberdeen, UK
In Progress

5.Own design Princess ArielStitcher: Elizabeth, Shipley, UK
Received

6.The pattern is from this website Mulan with blossom Stitcher: Lisa, Bristol, UK
In Progress

7.Love Quilt's file Elsa, head and shouldersStitcher: Kaz Bowen, Wakefield, UK
Received

8.Hachette disney cross stitch. Made for a previous quilt but in hospital for completion date. So ready to post. Snow white with appleStitcher: Zoe, Dewsbury, UK
In Progress

9.LQ files (by Merete) Belle in heartStitcher: Leanne Malcolmson, Romsey, UK
In Progress

10.Disney Hatchette magazine Rapunzel from TangledStitcher: Deborah, Leeds, UK
In Progress

11.4 princesses designed by Merete 4 princesses from LQ filesStitcher: Sally, Hull, UK
In Progress

12.Label Stitcher: Emma Robson, Doncaster, England
Received


Squares received

Cross stitch square for Edith-Rose's quilt
Stitched by: Emma Robson
Submitted: Oct 2022

Cross stitch square for Edith-Rose's quilt
Stitched by: Jodie Balaam
Submitted: Oct 2022

Cross stitch square for Edith-Rose's quilt
Stitched by: Nicola
Submitted: Sep 2022

Cross stitch square for Edith-Rose's quilt
Stitched by: Nicola
Submitted: Sep 2022

Cross stitch square for Edith-Rose's quilt
Stitched by: Elizabeth
Submitted: Oct 2022

Cross stitch square for Edith-Rose's quilt
Stitched by: Kaz Bowen
Submitted: Oct 2022



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