Sofia C's quilt   (Quilt Completed)
THANK YOU SO MUCH FOR SOFIA'S QUILT!!!
Quilted by: Tracey E
At the age of 2 months old, we noticed Sofia was having seizures. These continued and by 3 months old she was having up to 60 seizures a day. We were transferred to The Great North Children’s Hospital in Newcastle where we stayed for nearly a month,. Here she was diagnosed with a very rare metabolic disease called Nonketotic Hyperglycinemia. This is a life limiting condition and there are only 30 cases in the UK.