Megan E's quilt    (Quilt Completed)

Thank you

Absolutely blown away with how amazing this looks.
Each square is beautifully designed with so much detail
Megan is so happy
Thank you all at LoveQuiltsUK

Finished photos

Individual squares

Card

Stitched by: Sandra

Biography

Megan was born at 36 weeks. When born Megan was a blue colour and was struggling to maintain her oxygen levels. She was placed into the special care baby unit. The consultant said he thought she was struggling due to being born slightly early and she just needed a little more time.

On day 6 Megan took a very bad turn and they decided to do an echo on her heart. She unfortunately had a very rare heart defect called total anomalous pulmonary venous drainage (TAPVD) and was transferred to a different hospital. She had open heart surgery the following morning at 7 days old.

By 6 months old she required another surgery on her heart as she was diagnosed with pulmonary vein stenosis. Her pulmonary veins were narrowing.
She recovered well from both heart surgeries.

Megan needed a little help with feeding and supporting her weight after her heart repairs. She has a feeding tube for top up/extra calories and we also give her medicines through this.

Megan spent a lot of time in and out of hospital with various things.
When she was 2 years old she was diagnosed with autoimmune neutropenia.
Her body is attacking her good blood cells.

Whenever Megan becomes unwell with temperatures she needs to go to the children's ward for bloods and iv antibiotics. She now has a portacath (central line) to take bloods easily and to give iv antibiotics through.
We were originally told most children outgrow this by aged 3-5. But unfortunately this hasn't been the case for Megan. Megan turns 8 years old soon, and still requires us giving her a gcsf injection twice a week to help boost her blood count up. This injection boosts the bone marrow to produce more blood cells.

At first Megan absolutely hated them and she would hide away and cry. But years later she now takes them like such a big girl. Even though they hurt her she is so very very brave.

Megan is currently getting investigations done for chronic back pain. This is really affecting her daily life and we pray we can get some answers soon.

Over the years Megan has been through an awful lot. And has spent lots of time in hospital due to her health conditions. But she is a very happy kind beautiful little girl.