Words can't even begin to do any justice to how incredible this is.
This is a hand-made quilt that each picture has been lovingly made by different people, specifically for William.
William is absolutely blown away with it.
I couldn't even explain what it means to him, knowing that people who don't even know him care so much. (Although he does say he's not that special!)
Thank you so much, #lovequiltsuk xxx
William was born after being induced 3 days after his due date. After a very quick labour he was handed to me with the words a healthy baby boy.
He seemed to be developing as he should but would suffer with chest infections.
Before he was 2 he was still not walking although he was trying, he just seemed to not be able to support himself. He was referred to paediatrics with the suspicion of him having flat feet. Unfortunately that wasn't the case and he was referred to neuromuscular at Alder Hey where he was diagnosed with Duchenne just before he turned 2.
William took part in his first medical trial at the age of 4 doing a blind steroid trial.
At the age of 7 he consented to taking part in a medical trial for a new drug, this meant him having 2 muscle biopsies, many MRI scans lasting an hour+ each and countless bloods and physical tests. William endured all this without complaining and he even had to give up chocolate. The trial lasted for 2 years before it ended suddenly. This was worse emotionally than his original diagnosis because at this point hope was taken away from us.
At 9 William broke his leg, he just dropped to the floor, this was the end to his walking.
Soon after covid hit and everything stopped, all hydrotherapy hospital appointments everything. As a family we shielded for 22 months taking great measures to keep William safe, in so many respects it was tough but it was good to have the time together.
Last year William started to really struggle with back pain. After some tests in February it was discovered he has several compression fractures. William will now be on treatment for this for the long term.
Everything William goes through he just takes it on without complaining.
He has a smile that lights up a room and warms hearts. He is and will always be my hero.