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LoveQuiltsUK - Evie-Anne's quilt

Evie-Anne's quilt    (Quilt Completed)

Born:November 2009
Illness: 1p36 deletion syndrome

Theme: Princesses

Quilt delivered: 14th Jan 2013
Photo of Evie-Anne

Thank you

This truly is an amazing gift that will go with Evie-Anne everywhere she goes, thank you so very much to everyone involved, we are so grateful, it's simply beautiful xxx



Finished photos


Photo of Evie-Annes quilt

Photo of Evie-Annes quilt

Photo of Evie-Annes quilt


Quilted by: Vicky

Individual squares

Cross stitch square for Evie-Anne's quilt
Stitched by: Alison and Kyla Evans (+)
Submitted: Sep 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Carol Ayling (+)
Submitted: Dec 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Carol Ayling (+)
Submitted: Oct 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Hannah (+)
Submitted: Dec 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Jan S (+)
Submitted: Nov 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Karen Burton (+)
Submitted: Oct 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Leanda Vickers (+)
Submitted: Nov 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Lesleyann Curran (+)
Submitted: Jun 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Michelle Peel (+)
Submitted: Jul 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Nicola (+)
Submitted: Oct 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Poppie Taylor (+)
Submitted: Nov 2012

Cross stitch square for Evie-Anne's quilt
Stitched by: Shirley (+)
Submitted: Oct 2012


Fabric

Fabric for Evie-Anne
Fabric for Evie-Anne


Biography

My daughter Evie-Anne has a life limiting chromosome adnormality
called 1p36 deletion syndrome, there are approx 31 children within the
U.K and Ireland with this syndrome. Evie-Anne is 3 years old this November, it is a miracle she has made it this far!

Evie-Anne has very low muscle tone, it is unlikely she will ever walk
or talk, she is fed by gastrostomy directly into her tummy as she has
a very poor swallow and weak, damaged lungs caused from reflux it is
unlikely she will ever eat by mouth.

Evie-Anne also has uncontrollable
epilepsy, disturbed sleep apnea and night terrors, short bowel syndrome, and many other medical issues and health problems.

Evie-Anne is registered blind, constant diagnostic testing every 6 months show no sight, but we definately feel that Evie-Anne sees very
bright and UV lighting, she responds amazing when we visit the sensory
room every time she is in Birmingham Childrens hospital.

Evie-Anne loves to feel, she loves blankets, we keep buying them for
her, I fell in love with your love quilts as Evie-Anne is in hospital
so much that it will hopefully be a piece of "home" she can take
everywhere with her!

I am a full time carer for Evie-Anne and my 18 year old autistic son.


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