Logan was born in July 2010 at 36 weeks and six days gestation following a healthy and uneventful pregnancy. He was hypoglycaemic, cold and jittery so was admitted to the NICU for treatment and suffered his first seizure within the first 12 hours of life. An MRI at 10 days old identified a Subarachnoid Haemorrhage and severe Hypoxic-Ischemic Encephalopathy which has damaged multiple areas of his brain. He continued to suffer seizures and had feeding complications and was kept in the unit for 21 days. He was discharged with NG feeding still in use and over time we were able to discontinue use of it. Feeding however is still a huge battle as his co-ordination and strength in sucking and swallowing safely are poor and he can only tolerate thickened milk/purees in small quantities, as well as suffering from reflux, as such he is currently waiting to have a gastrostomy to make hydrating, providing nutrition and medicating less tiring and stressful for him.
He has spasticity and hypertonia in all four limbs and suffers from dystonic spasms, he is getting much better at holding his head for short periods of time but tires easily. He is unable to roll or sit unaided and uses a variety of different equipment and daily physiotherapy to help him to strengthen key areas and loosen his tight muscles to make life a bit more comfy. He is also under the orthopaedics (spinal) team as he has scoliosis and kyphoscoliosis, which is being monitored by them.
Logan also has epilepsy which is currently being monitored as he suffers daily seizures which are not fully controlled by medication as of yet, he is currently going through a series of genetic and mitochondrial tests to help to identify a cause for them to help medicate and treat him accordingly.
Logan has very recently started to smile â€“ although inconsistent this is a huge thing for us as it was something we felt we were really missing out on. He has Cortical Visual Impairment and as such is registered blind/severely sight impaired, however, over time and a lot of therapy he has started to acknowledge uv reactive objects in the dark room and has shown enjoyment when visiting the aquarium which is wonderful.
We are still playing a waiting game with Logan â€“ still waiting for them to formalise his CP diagnosis and nearly two years in and still none the wiser as to how or why this has happened, continued testing may hopefully one day shed some light. I think we are resigned to it just being â€˜one of those thingsâ€™, in the meantime we enjoy spending lots of quality time together as a family with our gorgeous boy