Imi had a rough ride right from birth. It was very quickly apparent that she had significant problems, and she spent the first two years of her life crying every moment she was awake.
Imi was sick. A lot. We used to spend up to 13 hours a day trying to get her to drink, only to have her vomit it back up again moments later, something which only stopped when she had her fundoplication and gastrostomy tube. This stopped the vomiting but also left her unable to burp, meaning that air pressure in her stomach causes her painful spasms.
Eventually she decided life might just be worth exploring a bit, and whilst medical complications keep on piling on, she now enjoys her special school, Godzone (Sunday School), Guides, and time spent at Helen House hospice.
Imi has hundreds of seizures every day, she also has painful muscle and bowel spasms. She is very very stiff, and her body is twisting itself into painful positions as she gets older. She has frequent chest infections, and sometimes it's a battle trying to keep on top of one illness before the next one comes along. However when her seizure fog lifts, she really enjoys life.