Kearyn was born at 37 weeks in 2012. His illness started straight away with feeding issues, reflux, dysmorphic facial features and failing newborn sight tests. Our local eye hospital, where we were sent by our health visitor at 2 months, diagnosed congenital glaucoma in both eyes and he's had multiple operations to help control this plus daily eye drops.
From birth Kearyn had noticeable dysmorphic facial features and started developing brown coffee coloured skin patches. After blood tests and visiting genetics Drs, by aged 1 he was diagnosed with NF1 with Noonan's Syndrome. This has resulted in multiple tests and scans to discover Kearyn has an inoperable tumour on his optic pathway. He is also registered blind and will fully lose his sight.