Callum was born at 5.23am on Saturday 6th August 2005 by emergency caesarian section due to fetal bradycardia (very slow heartbeat). When Callum was born, he was not breathing and had only a faint heartbeat so he was resuscitated.
He was without oxygen for seventeen minutes and was extremely poorly and had started having fits almost immediately. Because of this, the doctors were sure that he had suffered brain damage and so asked us, his mother and father, if he could be part of something called the TOBY trial (for more information, see http://www.npeu.ox.ac.uk/toby/).
He was accepted onto the trial and had to be transferred by ambulance to the Queen Charlotte and Chelsea Hospital in Hammersmith where he stayed for eight days before coming back to Basildon. He was given his prognosis at six days old:
*'He won't walk.'
*'He won't talk.'
*'He won't hold his head.'
*He'll have a mental age of around two years old.'
*If he doesn't resolve his feeding issues, he'll be dead in 3 to 5 years.'
His diagnosis is very big because the older he gets, the more apparent things are. At the moment he has:
*Hypoxic Ischaemic Encephalopathy - brain damage caused by lack of oxygen and blood flow
*Seizure disorder - epilepsy
*Gastro-oesphageal reflux disorder
*Right uretic reflux - kidney reflux
*Moderate bilateral hearing loss
*Four limb mixed cerebral palsy - quadraplegia
*Moderate to severe dysphasia - cannot swallow correctly
*Laryngeal malaecia - floppy larynx