Lucas was born on Mothers Day at a healthy 7lb. He was a very happy baby with no problems, reaching his milestones as expected.
At 5 months old he had his first seizure - and then all hell broke loose. Within 24 hrs from his first seizure I went from having what I thought was a perfectly healthy 5mth old to being told that my child had a rare genetic brain disorder - lissencephaly. I was told he would be severely disabled, have difficult to control epilepsy, be totally dependant, be unable to show any form of emotion and as if that wasn't enough - his condition was life limiting and it was extremely doubtful he would live to 2yrs due to the severity of his condition.
Well Lucas is now 9 and half yrs old - yes he is totally dependant on me, and no he can't walk but he can let you know exactly how he's feeling with his very expressive face. He does show emotion and lots of it - happy, sad, angry, annoyed, bored, frustrated - his facial expressions are definite and leave you in no doubt of his mood. His character and personality shines through. He deals with so much everyday - he has seizures day and night but he is such a little soldier and has more fight and strength of character than anyone I've ever met. He has been blue lighted to hospital more times than I care to remember and I've nearly lost him so many times. He is my reason for living and the best thing I have ever or will ever do in my life.