Jonathan is 15 and has Cystic Fibrosis. He was diagnosed at birth with failure to thrive and lost lots of weight in the first few weeks. His lungs were chronically infected by the time he was a year old.
He is colonised with both staphylococcus and pseudomas lung infection and takes antibiotics daily, oral and nebulised. He also has regular courses of IV antibiotics in hospital and at home to try to keep the infection and lung bleeds under control.
He is pancreatic insufficient and suffers with malabsoption, stomach pains and finds it hard to put on weight. He is severely underweight for his age and height. He has to take 50-60 enzyme capsules every day with his food to digest it.
In the last couple of years he has also been diagnosed with diabetes, requiring insulin injections, liver disease, severe sinus disease/chronic headache and osteoporosis, all related to his cystic fibrosis.
Despite his hours of medication, physiotherapy, nebulisers and injections every day, and all his hospital stays, he tries to remain positive.
Jonathan's younger brother Leo also has cystic fibrosis, so they have a special bond.
Although there is no cure for CF, we hope there will be new medications in the future, making life easier and less painful for Jonathan.