Niamh received her love quilt today and she absolutely loves it,in fact she hasn't let go of it since she unwrapped it,we would like to thank all the lovely people who made it for her,the work that's gone into it is fantastic,thank you so very much to every last one of you,this means so much to us that people like yourselves can put so much into these quilts and on top of that it was ready for her next surgery. Thank you all once again from the bottom of our hearts, and a great big thank you to Vicky the quilter,lots of love to you all at love quilts uk,from Niamh and her nanny ( nanny helped me with my letter) xx
Niamh was born two weeks late, and when Niamh was born she was pure white and very limp she was left with no treatment for a few days she should have had a transfusion the day she was born but it wasn't given until day two by which time it was too late and the damage had been done. Niamh has been through so much she has had a gastrostomy and a Nissan because her swallowing was unsafe when they did the operation I thought she was doing really well then she took a sudden turn for the worse and she started screaming out in pain she was taken back down to the operating room where they discovered she has pancreatitis.
We were in Great Ormond Street Hospital for almost seven weeks, then a couple of years later Niamh had to have both hips sorted and was in a cast for weeks. She never complained and then more recently she's gone through spinal surgery and had two rods placed in her spine. She is due to go in again for spinal fusion. In between all of that she had been admitted for her epilepsy but that is now under control. She had to have a jejunal tube because her gut was packing up, she is the most amazing little girl I know and can't describe how much we love her.