Luke B's quilt    (Quilt Completed)

Thank you

We have just picked up Luke's quilt from the post office. He is in love as are we all. He just had to put on his dinosaur onesie and roar for a photo. He has already dragged it to his bed for tonight. Thank you everyone involved, my daughter has loved reading all the names and where you are from

Finished photos

Individual squares

Card

Stitched by: Sarah Murphy

Biography

We found out at 20 weeks there was something wrong with our babies heart and managed to go to Bristol for a specialist scan the next week. We were told then that the baby had a double outlet right ventricle and a large hole in the heart. We carried on going for scans until Luke was born. He was taken to the NICU where he was given tests and had scans to determine how bad it was and when he would need operating on. While in NICU it was also discovered that he had dangerously high blood sugar, low platelets and a tongue tie. Which all needed fixing. He had a platelet transfusion and tongue fixed and eventually his sugars came down to a safe level. We were lucky enough to take him home for a few weeks before needing his heart surgery.

At 11 weeks we went back to hospital to have his hear operation, unfortunately when he went in to surgery they found he was to small to be put onto the bypass machine so they had to put a band around his pulmonary artery as a temporary measure to reduce the blood flow to his lungs, until he was big enough for the full repair.

He finally went for his surgery in November of 2016. The recovery from this went amazingly well and he was up and walking within a few days.

Luke is still left with a hole in his heart that they are monitoring closely but compared to what he did have it's not to bad.

Luke is now receiving help with his eating and talking as these are very delayed and cannot chew. He dose enjoy puree food and use loving learning baby sign to help him to communicate with us.

Luke is now a very happy, loving social boy.