When Rio was born he was the most beautiful baby . quite soon I knew as a mother to 2 other boys something wasnâ€™t quite right . He had very noisy breathing and wouldnâ€™t feed, I was up and down to Sheffield Childrenâ€™s hospital .They admitted Rio and put a feeding tube in and did his first operation on his airways, he had a floppy airway. Whilst in hospital we had many doctors coming up to see Rio about his silver hair colour and Rio wasnâ€™t following with his eyes as he should be, we were later told he had albinism and would be blind. Rio came home at 4 weeks old with a feeding tube in place. A couple of nights later my husband went to work on nights and I was giving Rio his last tube feed when I looked down and he had gone blue, my baby wasnâ€™t breathing and I had to call 999 and they told me how to resuscitate the scariest thing I have ever had to do, I did it I brought him back to life the ambulance came and we had to stay in hospital. They said he had refluxed on his milk and thatâ€™s what caused him to drown on his feed, he went to theatre as he had vocal cord paralysis and would need a tracheotomy.
This was put in when Rio was 7 weeks old and he came out when he was 2 . In the mean time it came back Rio had Angelman syndrome, then just before his 3rd birthday he started fitting and was in status and was diagnosed with eliepsy . This is just a short paragraph of Rio's life, some of things he has overcome are amazing from burst arteries in his mouth and nearly losing him for the second time , to having seizureâ€™s and hoping your child will come out of them, to then get Toddâ€™s syndrome after that paralysis one side of your face , to the be told when heâ€™s 7 he also has another syndrome on top of everything else syngap1 . So my boy is unique heâ€™s the only one in the world with both , he truly is amazing ðŸ’™ðŸ’™