Edie's quilt    (Quilt Completed)

Thank you

Thank you so much it's absolutely beautiful. It's so pretty and done to the most amazing standard. Thank you again so much for the beautiful gift for Edie, she loves it x

Finished photos

Individual squares

Card

Stitched by: Beth C

Biography

When I was pregnant with Edie I was told she was small and had an enlarged stomach. I had lots of fluid around her and towards the end of my pregnancy she stopped growing. She was born early via C-section and after a quick hold she was taken for x-rays and checks. When she returned I was told she was fine.

She suffered terribly with reflux and was constantly sleeping, refusing to wake for feeds and dropping weight quickly. We ended up back in hospital as I knew something wasn't right. She was tube fed but she still wasn't putting on enough weight. It was when her heel prick test came back she was diagnosed with cystic fibrosis.

She's two years old and has only had 7 full weeks where she hasn't been on antibiotics due to persistent infections. She has daily physio and medication to help clear her lungs of a thick mucus and help her absorb the fat and nutrients from food. For months she developed a fear of hospitals & nurses as they had to do a lot of the tubes and IV treatments, this petrified her and she stopped eating and talking as a result. We also struggled to give her her daily medications and she had play therapy to help with all of this.

We know from her condition that these infections cause deterioration and we have to keep her as healthy as possible until a cure is found.