Massine was born twin one at 25wks and from birth suffered PVL, hydrocephalus and numerous infectious diseases. This resulted in numerous surgeries - 64 in total.
He had meningitis twice, staph of the brain, heart surgery, lung surgery, multiple shunt blockages, strangulated umbilical hernia, GERD, eosinophilia, epilepsy, dystonia, hip dislocation and a curved spine .
Massine is now completely deaf and blind, mute, nil by mouth, peg fed, quadriplegic and tracheostomy/oxygen dependent. He has failure to thrive due to his eosinophilic colitis and eosinophilia of the throat.