Freddieâ€™s short life so far - as a first time mum I felt flutters and nothing more, I was told this is normal. I was a month early according to Dr's dates but to mine I was on time. Freddie struggled orally, he had blood tests at 16 weeks old, seizures started Nov 2016, ng feed started 21/12/2016. In July 2017 he had peg surgery which went wrong and he nearly lost his life and in Sept 2017 jeg surgery.
Ultimately Freddie is such a happy little boy but completely depends on me due to his lack of movement. He has dystonia, is hypertonic, hypotonic and prone to C.Diff too which has been horrific with the first signs in July 2018. Unfortunately there is no cure as he is a carrier. He started pre-school this last Sept and I broke my ankle on the same day.