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LoveQuiltsUK - Megan S's quilt

Megan S's quilt    (Quilt currently being assembled)

Born:2004
Illness: Prader-willi syndrome

Theme: Unicorns

Quilt currently being assembled
Photo of Megan S

Theme details

Unicorns - Backfilled quilt



Biography

Megan was very floppy and wouldn't feed when she was born. We received a diagnosis of Prader-willi syndrome when she was 2 months old. She was tube-fed until she was 6 months old and couldn't walk until she was nearly 3. She still has low muscle tone at nearly 17 years old and finds walking a long way extremely tiring and cannot ride a bike or do other things children take for granted.
The main part of Prader-willi syndrome is that the hypothalamus doesn't work properly so Megan feels constantly hungry even when she has just eaten. If her diet is not controlled she could become morbidly obese and pass away from complications this could cause. We have managed to control Megan's weight but it is extremely hard as she has meltdowns as she is constantly hungry. We have to have locks on all our cupboards in the kitchen. Megan attends a special needs school and has learning difficulties so her mental age is much younger than her actual age.



Patterns


1.Stitcher: Jodie Balaam, Lawshall, England
Received

2.Stitcher: Sarah B, Essex, UK
Received

3.Stitcher: Gemma.H, Glos, UK
Received

4.Stitcher: Sylvia, Clacton, England
Received

5.Stitcher: Emma Robson, Doncaster, England
Received

6.Stitcher: Maz, S Wales, UK
Received

7.Stitcher: Rhiannon Hobbs, Abergavenny, UK
Received

8.Stitcher: Kaz Bowen, Wakefield, UK
Received

9.Stitcher: Jenny, Rushden, UK
Received

10.Stitcher: Liz , York, UK
Received

11.Stitcher: Julie, Portgordon, Scotland
Received

12.Label Stitcher: Jan G, Hull, UK
Received


Squares received

Cross stitch square for Megan S's quilt
Stitched by: Jodie Balaam
Submitted: Sep 2020

Cross stitch square for Megan S's quilt
Stitched by: Sarah B
Submitted: Nov 2020

Cross stitch square for Megan S's quilt
Stitched by: Gemma.H
Submitted: Mar 2021

Cross stitch square for Megan S's quilt
Stitched by: Sylvia
Submitted: Apr 2021

Cross stitch square for Megan S's quilt
Stitched by: Emma Robson
Submitted: Apr 2021

Cross stitch square for Megan S's quilt
Stitched by: Maz
Submitted: Apr 2021

Cross stitch square for Megan S's quilt
Stitched by: Rhiannon Hobbs
Submitted: Apr 2021

Cross stitch square for Megan S's quilt
Stitched by: Kaz Bowen
Submitted: Apr 2021

Cross stitch square for Megan S's quilt
Stitched by: Jenny
Submitted: Apr 2021

Cross stitch square for Megan S's quilt
Stitched by: Liz
Submitted: Apr 2021

Cross stitch square for Megan S's quilt
Stitched by: Julie
Submitted: May 2021

Cross stitch square for Megan S's quilt
Stitched by: Jan G
Submitted: Aug 2021


Card

Card for Megan S
Stitched by: Linda

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