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LoveQuiltsUK - Layla B's quilt

Layla B's quilt    (Quilt Closed)

Born:2007
Illness: Juvenile idiopathic arthritis

Theme: Hearts, Flowers Butterflies

Date opened: 22nd Jun 2022
Date closed: 26th Jun 2022
Deadline: 26th Oct 2022

Photo of Layla B

Biography

From being born Layla seemed to always be a sickly baby. She was constantly in and out of hospital with tonsillitis. Layla had chronic tonsillitis and would only get better for around 2 weeks before she would have it again. Despite this we had to wait until Layla was 3 to have her tonsils removed.

As a baby Layla would suffer lots of nasal regurgitation after drinking milk to the point she would choke. I was told this was normal and I was overreacting!

Layla failed to hit speech milestones. After many visits to speech therapy Layla was sent to see a plastic surgeon, and then she was diagnosed with velopharyngeal insufficiency. Layla couldn’t physically build any air pressure in her mouth to form sounds, all the air leaked from her nose. She’s had numerous corrective surgeries and had to attended a school miles away from home to get intensive speech therapy. After lots of effort and hard work and many years, Layla was eventually able to speak clearer.

Throughout all this Layla was under the assessment of camhs too and she was diagnosed with Autism, later to be also diagnosed with selective mutism.

When Layla was about 10 she started to complain of joint pain, especially in her jaw! We were sent round lots of doctors and dentists. Layla's bloods showed she had inflammation in her body and after an eventual MRI scan, Layla was diagnosed with Juvenile Idiopathic Arthritis. This has been particularly destructive in her jaw joints, and her jaw has been the one area where her arthritis has remained active and continues to destroy her joint. Layla struggles to eat. She has to have meal replacement drinks quite often and she suffers a high amount of pain. She’s had surgeries to try and slow down the damage to her jaw, and she's taking strong medications. Layla is on immunosuppressive therapies. She goes to hospital once a month and has an infusion of medication and takes daily medications at home. These make Layla sick and tired.

Covid was particularly hard on Layla, due to her medications and high dose steroids usage she was classed as clinically vulnerable, and she didn’t leave the house for anything other then hospital for a long time. Despite all this Layla still always has a smile and a kind word for everyone, which makes being her mum my absolute pleasure.



Patterns


1.Rocking Horse Cross Stitch on Etsy Flower heart in dark pinkStitcher: Nicola, St Albans, UK
Received

2.Susan Bates floral garland.Stitcher: Leanda Vickers, Oldham , England
Received

3.From LQ pattern files. Heart filled with flowersStitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received

4.Bleu de Chine Monochrome heart from Bleu de ChineStitcher: Jan S, Enid, Oklahoma, USA
Received

5.Lucie Heaton, heart tree with hearts in different coloursStitcher: Anne, Sandefjord, Norway
Received

6.Butterfly by cladaxstitch of etsy will do in pinksStitcher: Jodie Balaam, Lawshall, England
Received
listing: https://www.etsy.com/uk/listing/790111631...

7.Michaela Learner ButterflyStitcher: Gemma.H, Glos, UK
In Progress
https://m.facebook.com/505181406163813/photos/a.50...

8.501 cross stitch designs book Rabbit in heart made of flowers with butterfluesStitcher: Pru, Les Adjots, France
Received

9.Donnas Crafty Cave Heart made up of 65 smaller hearts, in rainbow colorsStitcher: Jeanne, Pennsylvania, USA
Received
not sure

10.Flying high butterfly cushion by Gail Bussi in animal friends cross stitch favourites magazine Heart shape made up with flowers, butterflies and ladybirdsStitcher: Sarah, St. Albans, UK
Received

11.VladaXstitch on Etsy Purple and yellow butterfly with flowerStitcher: Rachel, London, UK
In Progress
https://www.etsy.com/uk/listing/848005787/

12.Label Stitcher: Heather, Littleborough, England
Received


Squares received

Cross stitch square for Layla B's quilt
Stitched by: Heather
Submitted: Jul 2022

Cross stitch square for Layla B's quilt
Stitched by: Nicola
Submitted: Jul 2022

Cross stitch square for Layla B's quilt
Stitched by: Leanda Vickers
Submitted: Jul 2022

Cross stitch square for Layla B's quilt
Stitched by: Miss Debbie Elkington
Submitted: Aug 2022

Cross stitch square for Layla B's quilt
Stitched by: Jan S
Submitted: Jul 2022

Cross stitch square for Layla B's quilt
Stitched by: Anne
Submitted: Jul 2022

Cross stitch square for Layla B's quilt
Stitched by: Jodie Balaam
Submitted: Jul 2022

Cross stitch square for Layla B's quilt
Stitched by: Pru
Submitted: Jul 2022

Cross stitch square for Layla B's quilt
Stitched by: Jeanne
Submitted: Sep 2022

Cross stitch square for Layla B's quilt
Stitched by: Sarah
Submitted: Aug 2022


Card

Card for Layla B
Stitched by: Deborah Desmond Clarke

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