When Sam was born he didn't have any problems. When he was a few months old we started to get concerned as he wasn't interested in his surroundings, he needed waking for feeds and he was quite floppy.
We were referred to the hospital where they undertook tests including MRI, bloods, lumbar punctures and hearing. It was discovered that Sam had a form of leukodystrophy - thus is where the insulation in the brain doesn't develop properly, and in Sam's case caused his cerebral palsy which affects all his limbs making them very stiff. Over the years Sam has had numerous operations, including major hip surgery three times, ankles fused, several kidney operations to remove stones.
Sam is unable to sit unaided or walk. He has a few words but is mainly non verbal. He is a very happy boy who manages to wrap most people he meets round his little finger.