Henry was born in June 2009, our first born child and was the most amazing little miracle ever. After being told I was unable to have children we could not have asked for a more perfect little boy - we adored him. Henry made us into a family which is something we thought we would never have.
Henryâ€™s first year was like any other child. He reached all his milestones and developed his personality. He loves Disney films, especially Cars, and often pretends to be his favourite characters.
When Henry was just two-years-old we noticed a major change in him. He went from being a happy little chappy to always complaining his legs or tummy hurt. Christmas and New Year was distressing because Henry was not right; he was happy and playful one moment and seemingly in pain the next.
His tummy was slightly pot-bellied, but after taking Henry to the doctor six times and being told he was constipated, I was made to feel like an over-reactive mum. Although I was sure there was something not right, we decided that maybe a break would do us all good, so we headed off to visit Nan-nan and Grandad. Henry adores both sets of grandparents and was so looking forward to going to Hunstanton seaside, however once we were there, he became so grizzly we returned home the same day. By this point I was sure something was seriously wrong. His stomach was so swollen he looked pregnant, so we took him to our local hospital where he was immediately transferred by ambulance to Oxford Hospital. The blue lights were so exciting for him, but I could barely remember how to breathe through sheer terror. Once there, gruelling tests revealed a diagnosis that came like a bullet to the chest, Our precious little boy had cancer; Stage 4 High Risk Neuroblastoma. Henry was battling for his life and at that moment our world completely shattered. Henry has just been diagnosed with another tumour and is now facing another battle and more surgery.