I have just returned back down to earth after watching Alice open her parcel. It is just unbelievable - out of this world. I was totally speechless when I saw them. I don't know what I was expecting them to be like, but they are just so amazing that even the girls were almost in tears.
We have had them laid out on the lounge floor & looked at all the squares individually & the girls were amazed by the fact that all the stitchers had their names & town or country on their square.
Alice got herself all emotional & said how it was the nicest thing anyone had ever done for her. She absolutely lives for dogs & can already recall all the different breeds featured on her Quilt! In view of having had a bad week with scan results, it was a lovely 'pick me up' for her. She will no doubt demand that it go on our visit to Alder Hey, where I imagine it will get a lot of attention from everyone.
Vicky x (Alice's mum)
Alice is the sister to Milly and she received a heart themed Quilt on the same day as Alice.
Alice very sadly passed away on 12th January 2013 :( Rest in peace, Alice
Vics from postpals uk at the beginning of the year wrote -
Alice first started receiving post as her sister Milly has been a postpal for a year. Alice has her own health problems though.
Alice started losing weight which caused concern. As a Type 1 Diabetic, her sugar levels were out of control and she started having hypo's during the night which was very scary for everyone involved. The weight loss continued and she started to feel really ill. Next she developed a bad itch all over and would scratch and scratch until she bled as it wouldn't go away. She also has enlarged Lymph Nodes and anxiety which made going to school difficult.
Alice's family took her to various doctors which dragged on for months, and faced with the prospect of another long wait for a biopsy of the lymph nodes they decided to see a consultant privately. He carried out a blood test, chest x-ray and a scan before delivering the terrible news that Alice had a form of cancer called Hodgkins Lymphoma. He said that it had spread beyong the inital stages as shadows showed up all over her chest x-ray. He sent her home for the night with the instructions to be admitted to Manchester Children's Hospital the next day (Saturday) for more tests and to start Chemotherapy.
Update September 2008
We had our scan in early September and unfortunetly the results show disease progression. We have been back in Manchester, but this time at Christies where we have been fortunate to have the most wonderful consultant who actually talks to us. What a difference a bit of communication makes. We were advised to go with radiotherapy, but not being one to settle for the first answer, we spoke to the US and to GOSH/UCH, both of which would do different things. They would go with high dose chemo and stem cell as they don't think that the radiotherapy is the answer for Primary Persistent Disease. We have therefore made the difficult decision to pull Alice out of treatment in Manchester and get her down to London asap. Manchester still felt the radiotherapy was the best option. It wasn't easy, both have their advantages, but we had to go for the one we thought was best.
Not the best of months, but at least we have a plan, if a little vague.
Written by Alice's mum Vicky
Alice is on postpals www.postpals.co.uk/pals/Alice+P