We knew when I was carrying oscar that potentially he would have the same problem as his brother, because of this he was induced in a specialist hospital away from home (first time I'd ever left his brother!!) with an exploratory operation booked for him at just 2 days old, when he was born, initially we felt all was fine and he was given the all clear to go on the ward, (although discovered also had mild cleft palate) however he started making noises with his breathing and I just knew it was his windpipe.
We called the midwife who said for peace of mind they would take him to special care unit. There he was wired up and we didn't get to hold him much, he didn't feel ours with all the machines etc. On the day of his op we had our cuddles and prayed he would come back to us. He did, with a tracheostomy. My legs crumpled beneath me. My tiny baby with so many wires and now a tube in his neck. My second child to have trachy, wasn't sure how I was going to cope.
Life went on day by day, problem after problem but little Oscar fought and fought and grew stronger and stronger. Amazingly he got home at 6 weeks!!!! Life for Oscar can be really tough, he vomits a lot daily partially due to trachy and secretions and partly due to cleft and his reflux issues. Oscar is also profoundly deaf and is now signing. He first sign was food!!!!!!!! And Oscar loves food so this was a magical moment for us! Now he doesn't stop signing it!! He was NG tube fed for a while but his love for food meant he soon got rid of that!!!! He still can't manage " proper food" but he doing great, slow weight gain but weight gain!!!!
He is a little monkey with his trachy, pulls it out all too often, because of this he has special arm braces we have to put on when I'm driving or going to the loo etc because within 2 seconds he'll have it out!!!!!
We have on going concerns with his weight, his hips, but Oscar is Oscar and his cheeky little smile with his head on one side, big blue eyes I know he will face his battles head on with everyone behind him. I am so proud of him, he goes through so much but always has a smile and a cuddle for you.